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Posted: Fri Dec 04, 2009 9:47 am
by Sharon
amc -
At the top of this forum is a "sticky" called Glossary.
http://www.thisisms.com/ftopict-7268.html
These are the terms which are most frequently used when talking about CCSVI.
In answer to your question though -- it is a type of a MRI - uses the same machine but different software which looks at the venous structure.
Sharon
MRI,MRV?
Posted: Fri Dec 04, 2009 9:52 am
by amc
Thanks Sharon!
CCSVI and diagnosis
Posted: Wed Dec 09, 2009 9:23 am
by goddles
In Canada unlike the US it is difficult to access a MRI machine that has the software and sensitivity such as a 3TESLA. for CCSVI
I believe the only place offering clinical studies that is not research based in Canada is in Vancouver which has the only 3T MRI offered to the public.
A shame really
Posted: Wed Dec 09, 2009 9:49 am
by Sharon
goddles -
I do not believe the 3 Tesla is imperative. My tests at Stanford were completed on a 1.5 Tesla
Sharon
1.5 T
Posted: Wed Dec 09, 2009 10:27 am
by goddles
well thats good to know.
don't really understand how it works but thought the 3T was more sensitive?
Posted: Thu Dec 10, 2009 6:21 am
by jgkarob
Hi,
I posted about this on the MSS forum Everyday Living in the UK. I was trying to warn people that the results are a long way from being conclusive and even then they will have to be reviewed by NICE.
The National Institute for Clinical Excellence has a nasty history of denying treatments to people due to cost-effectivity rather than possible efficacy.
Before 2002, you were unlikely to be offered a treatment, such as Avonex, Rebif or Copaxone. This was because NICE had decided that such treatments for RRMS were not cost-effective.
There was a huge campaign to get access to these drugs and in the end the government decided that people with MS were worth treating after all.
If CCSVI treatment is to be offered or even screening, then there most likely be a huge battle to get access, but NICE are notoriously conservative and in my opinion, people in the UK are going to have to either self-fund testing or travel to somewhere else if they want to be treated in the next ten years.
Well, maybe sooner, but it won't be a quick decision and by then, perhaps something else will have turned up - that may help people with PPMS. It's about time!