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Posted: Mon Jun 28, 2004 7:09 pm
by Shayk
Hi DawnsBrain and welcome to This is MS.

I didn't know what to do in the intros either, and even tho you see "Family Elder" by my name, I have finally managed to figure out that's because I've posted so many times. :roll:

Because I really am old (57), the first time I saw it (and having never done anything like this before), I thought they stuck it up there because of my age. :lol:

There's lots to learn here and lots of opportunity for input.

Take care

Sharon

Intro

Posted: Wed Jun 30, 2004 7:06 am
by Alicia
Hello everyone!

I am 28 yrs old and was diagnosed with ms 5 years ago about 3 mo after the birth of my first child. I am married and have two children. I have been using Copaxone for the past 3 years.

I think that this website is a great resource.

Posted: Wed Jun 30, 2004 9:14 am
by seahorse
hi alica, welcome to this board :wink:

best wishes from leipzig, antje

Posted: Thu Jul 01, 2004 2:51 am
by mscaregiver
Hi Alicia
Nice to meet you and hope you find any information you need here, great group of folks and great discussions and reference material here..

Jump in and post away :-)

Philip

Posted: Sat Jul 03, 2004 8:20 am
by Sammion
Hello everyone........I'm new to this forum, but have been on others with this same name. For those that don't know me I'm 33 (at least for a few more days :wink: ) I was dx in Feb 04 after years of ignoring symptoms. I'm currently on Avonex and a few others for symptom relief. I'm married with 2 teenagers. I try to keep a positive and upbeat attitude most of the time, but do succumb to pity parties occasionally.

I'm looking forward to reading more of everyone posts.

Posted: Sat Jul 03, 2004 9:48 am
by mscaregiver
Greetings Sammion, nice to meet you and welcome to this wonderful forum.

Jump in and post and get to know everyone..

Philip

Posted: Tue Jul 06, 2004 11:47 am
by flora68
Hi. I'm Flora. I'm 53 and was diagnosed with RRMS last August. Tried Avonex; got ragingly suicidal exactly once a week. needless to say I got off that. Took Copaxone for a few months; got very, very lumpy and itchy, and the MS definitely got worse. Got off it and got much better. So I'm not on any drugs for MS now and don't plan to be. I just wish I could fast-forward to Autumn. Texas summers are very long and extremely oppressive. :)

Posted: Tue Jul 06, 2004 1:29 pm
by mscaregiver
Hi Flora, and welcome to the forum, hope you will jump in and enjoy the banter in here, and I hope it cools down soon for you..

Philip

LDN

Posted: Thu Jul 22, 2004 5:24 am
by new2this
Hey all....I am 38 been on av. for about 3 years and am just wondering what LDN is. I have little kids and hate the days after the shots. When they went to pre-filled I went back to crappy next days and it hasn't gotten better. Think I am going back on the ones I mix soon, neurologist says it is available still but i digress. I am still in denial after all these years and if it weren't for my kids and the fun i have with them i probably would get off the drugs and see what happens. Unfortunately I cannot be selfish at this point in time lol. Anyone else seem to get more spots on the brain after getting on the drugs? Anyone tried any of the "herbal remedies"? How about the guy on the west coast who says changing ur diet et al. works? I probably have a million questions but at this point I have to get to work. Talk to ya all soon.
Rob

Posted: Sun Jul 25, 2004 6:43 pm
by Shayk
Rob

Hopefully by now you've found the LDN thread. There's lots of great information here about LDN.

There's also a diet thread where you'll find information on the Swank diet and various vitamins and supplements that people decide to take or not.

I'm an Avonex user and only had prefilled. I'm doing a bit better with the side effects. I thought I was over them and then bam had a bad Saturday, so who knows :roll:

I'm trying to eat less saturated fat (much less actually since I also have high cholesterol) and am trying some supplements. There's also a thread if you scroll down, on "regimens", what people are doing that's more than just one of the CRAB drugs.

All in all, lots of information here. I always find lots to think about and learn.

Do take care

Sharon

REBIF & LDN

Posted: Mon Jul 26, 2004 4:51 am
by BAP
finn wrote:Hi again,

thank you for your warm welcoming.

I'll try to keep my act together, so you'd be able to understand what i am trying to say also in the future :wink: .

have a nice weekend you all!

-finn

Hi everyone

Posted: Mon Jul 26, 2004 5:58 am
by soulger
I am 42 year old male dx in 2002. I have had the disease at 15 years prior to dx.
I am SP and Neuro says that major flair up that brought dx was probaby transition from RR to SP.
Was on Av then Rebiff now on Copax and love it much better. Couldn't handle interferons for more than six months at a time.
Married 20 years and have four children.
Don't know how often I can be here, but would like to meet as many as possible.
I love emails so feel free.
I live in Oklahoma and see my neuro at the only MS clinic in the state.

Hope everyone is doing well. :)

great forum!

Posted: Wed Jul 28, 2004 11:49 pm
by dc222
Hello all!

My name is Dana and I am in limboland. I have no dx...of anything! I have been looking for answers for awhile now. A little about my history...

in sept 2002 dx'ed with endometriosis
in octo2002 began noticing weakness, loss of grip, and tremor in hands and arms...went to a GP and rheumatologist thinking perhaps Fibromyalgia was in the picture...both docs felt this was not the cause...started noticing more leg pain and weakness...went to my first neuro in Jan 03...he did MRI...found 4 lesions but did not suspect MS...left leg eventually stopped working one day and took about 3 months to get strength back...went back to GP and he requested 2nd opinion of MS w/ new neuro...neuro #2 felt sx's were due to underlying anxiety. then...i got pregnant...gave birth to a beautiful baby girl in february of this year.....5-6 weeks post-partum all previous sx's came back and new ones developed. severe headaches, eye pain w/ movement, problems w/ right leg...opthalmologist sending me to yet another neurologist next week. hopefully we'll get a follow up MRI and check that everything's okay.

i started a forum on yahoo a few weeks ago for people like me, stuck in this limboland. one of my members posted a link to this forum, and i think it's fabulous! very educational and such a great resource! thank you! look forward to meeting you and learning lots!

~Dana

Posted: Thu Jul 29, 2004 12:51 am
by Arron
Welcome to our community, Dana! I'm glad you have taken a step towards activism for the limbo-landers and equally glad you have found our site useful. Most importantly, I wish you a speedy resolution to the uncertainty and with that behind you, an effective treatment regimin.

Welcome again, and we look forward to your participation and updates!

Thank you!

Posted: Thu Jul 29, 2004 10:57 am
by dc222
Arron,

Thanks so much for the welcome. I've already started a thread on spasticy/clonus and have some very good replies. So much to learn!

~Dana