This Is MS Multiple Sclerosis Knowledge & Support Community

I was diagnosed in 2001, tried avonex for a year, then copaxone for 6 months, now back to avonex. This will probably seem weird, but I prefer the IM injection to the subcu; it feels more precise.

Hi Alachessie, welcome to the site!

You have an interesting preference there I'm sure more than a few others feel the same way...

Welcome again, and let us know if we can help or do something better,
-arron

Hi...

Im Dawn....just found this place tonight. Cant wait to do some reading and meet some new friends. I was dx with R/R MS in 1997. Im on Copaxone now.

Dawn

welcome Dawn!

Hi Dawn,

I just can't believe how quiet it's been around here for the past few days, but welcome to the group.

I'm sure there is plenty for you to read without any new postings, so enjoy

All the best,
Chris P

Nice to meet you....thanks for the welcome! Im hoping to get some serious reading done this week...this seems like a very interesting group and Im looking forward to reading the posts etc!!
take care!
Dawn

Hi. I hope I am not posting twice here. I am undx right now, but doc's think it's a matter of time.

No real remissions in about 8 months now. Last year was better.

I like this site, have been visiting for a while. Lots of info and smart people. Not too much junk.

I want to learn as much as I can to help me and my family while I go through this. I worry about my husband most of all, it's hard on a guy. He wants to fix everything for me. My kids are pretty cool with it all, know mommy needs a nap or has to slow down.

It's nice to meet you guys. It's nice that your here.

Shanoot

Welcome shanoot! I'm glad you find our community useful...

my name is lexi. i am a 21yr old female, diagnosed in july of '04. i go to carnegie mellon university in pittsburgh, pa. i just started my senior year as a philosophy major.

I just found this site by accident. I didn't even know it existed! I am Crispie, 41, WI, USA. I was dx with MS in June of 2002. It is really nice to have another site to come to, to meet many new people, and find new info. Thanks for being here!! --Crispie

Hi everybody. My name is Deb & I live in Aviston, Illinois. I am 50 and have been married for 17 years. I have had this crazy disease for 27 years. I have been taking Betaseron since '97.

I heard about this site from a friend who also has MS. I glad she told me about it. When did this site get started?

Hi all . . . my name is Cherie and I am a 45 year old single mom of two lovely daughters, aged 12 & 8. I had my first major attack in 1991 and was told then that it was either MS or a virus that entered my central nervous system. Nothing major after that till 2003 (almost the exact same date, 12 years after the first event), but even more severe.

The pain was so bad, even worse this last time, that I am very afraid of ever having to face that challenge again. Has anyone else experienced severe pain - where the seams on clothes or a crinkle in the bed sheets was unbearable? Did you find something that works, even just to take the edge off. I am so thankful that the occurences have been infrequent.

My company has been very supportive and has temporarily set me up to work from home. This allows me the flexibility to work when I am feeling good, and rest when I am not. This is not very convenient for them, and sometimes a struggle for me, but it has allowed me to feel productive and normal while I come to terms with my limitations. To date, they have been very kind and sensitive to my unwillingness to give up.

I wonder if there is someone who is experienced in LTD and/or Canada Pension benefits; how to apply, what the criteria would be for permanent disability entitlement?

Thank you for any feedback or advice you may have.

Cherie

Sorry you have to be here but welcome to This is MS. You've found a great site. Unfortunately I don't know the Canadian LTD benefits system at all. Hopefully someone does.

Your unwillingness to give up is wonderful and I sure hope things start turning around for the better in short order.

Take care of yourself and those beautiful daughters....and welcome again.

Sharon

Cherie

I just found this in a paper, recommend to me by Felly, that is published by the UKs "Best Medical Practice" agency N.I.C.E. and recalled your posting:

Neuropathic pain, characterised by its sharp and often
shooting nature, and any painful hypersensitivity, should be
treated using anticonvulsants such as carbamazepine or
gabapentin, or using antidepressants such as amitriptyline.

I guess you may have been through all those but maybe not.

Good luck
John

The paper is here if you want it http://www.mssociety.org.uk/docs/NICE_A ... line_8.pdf

Welcomes to Cherie, Deb, Crispi and Lexi! It is great to see such a strong group of newcomers to the site. Of course, we hope you find it useful and look forward to your participation in the community. Please let us know if something is missing or if you feel we can do something better.

Best, and welcome again,
-Arron