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CCSVI
Posted: Wed Dec 16, 2009 6:22 am
by Edser
I think we were not sure how to anwser your question about the numb fingers so thought it best to say nothing! How are you feeling? Have the fingers got better?
Good aftetrnoon,
My finger's are a little better.But i'm very positive about the whole procedure.Thank's for asking.
Slainte Mo Chara
Edser & Anna
Posted: Wed Dec 16, 2009 6:32 am
by tzootsi
Edser, thanks for keeping us up to date. CCSVI patient updates are the most interesting posts on this site! Just curious - what was your edss prior to the procedure?
Posted: Wed Dec 16, 2009 7:33 am
by AllyCanada
I am also on the list for April/2010. I am really concerned about after care. What kind of check up after the procedure is performed are we going to need? Do we know of anyone from Canada or USA that has gone to Poland to get the procedure done?
Posted: Wed Dec 16, 2009 8:03 am
by Edser
Posted: Wed Dec 16, 2009 8:10 am
by TFau
Thank you for posting your updates, Edser! I'm glad that you're doing well!
Posted: Wed Dec 16, 2009 8:12 am
by bestadmom
Edser,
After I commented on your nice pajamas, I figured you didn't need to hear from me again!
All my best,
Michelle
CCSVI
Posted: Wed Dec 16, 2009 8:23 am
by Edser
bestadmom wrote:Edser,
After I commented on your nice pajamas, I figured you didn't need to hear from me again!
All my best,
Michelle
Hey Michelle
& too make it worse i bought slipper's to match
Michelle your a lucky woman,i deleted all the MS people from my FaceBook profile as i taught they just became friend's just for the CCSVI & MS information.Michelle i didn't delete you,OK.
Slainte Mo Chara
Edser & Anna
CCSVI
Posted: Wed Dec 16, 2009 8:26 am
by Edser
TFau wrote:Thank you for posting your updates, Edser! I'm glad that you're doing well!
Your Welcome
Slainte Mo Chara
Edser & Anna
Posted: Wed Dec 16, 2009 8:28 am
by bestadmom
Thanks Edser!
Comment on Edser's progress
Posted: Wed Dec 16, 2009 8:39 am
by Dovechick
Edser, pleased to hear that the fingers are getting better. It is hard to know what kind of sign these symptoms are, which is probably why no one answered.
Ally Canada. So far people who have had their procedure done in Poland will have to go back for a check up. Erika said Dr Simka told her to get in touch in a couple of months to make another appointment. This might be a problem for those living further away. We are hoping of course that eventually we will all be able to get this procedure done closer to home.
CCSVI
Posted: Wed Dec 16, 2009 9:16 am
by Edser
AllyCanada wrote:I am also on the list for April/2010. I am really concerned about after care. What kind of check up after the procedure is performed are we going to need? Do we know of anyone from Canada or USA that has gone to Poland to get the procedure done?
I'm on Asprin,Fraxiparin,Areplex,Helicid after the procedure & Dr Simka will contact me in 2-3 month's.
Slainte Mo Chara
Edser & Anna
Posted: Wed Dec 16, 2009 3:30 pm
by Brynn
Perhaps there will be places in the US and Canada that will be on board with these procedures, and our needs, by the time the bulk of us are able to have our procedures. We all need to email all these links to open minded physicians. Brynn
CCSVI
Posted: Thu Dec 17, 2009 4:11 am
by Edser
Good Afternoon TiMS,
I received this from a member of PATHWAYS yesterday,as they would like to do an article on my Procedure in Katowice(Poland).
PATHWAY'S:Thanks very much for keeping me in the loop re: media interest in CCSVI in Canada. Over here (England) I have just heard that the Sun are “very interested” in the story.
Slainte Mo Chara
Edser & Anna
Posted: Thu Dec 17, 2009 4:46 am
by bestadmom
Good for you Edser! Not only are you vastly improved, but now you're going to be famous for telling your great story to the UK.
Posted: Thu Dec 17, 2009 6:04 am
by TFau
Wow, great job!