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Posted: Thu Mar 18, 2010 3:24 am
by AnnaP
Hi everyone

My appointment is in June,but haven't gotten an exact date, did anyone get their app.?
Starting to panic a little!

Anna

Posted: Thu Mar 18, 2010 4:02 am
by livabird
DON'T PANIC MINE IS IN JUNE AS WELL I HAVEN'T HEARD I THINK THEY JUST GAVE OUT APRIL SO FAR. I WAS JUST READING ABOUT VACCINATIONS. DEPENDING ON THE SEASON THEY SAY ALSO TB AND DIPTHERIA. GEEPS.

LIVA

CCSVI in Bulgarie

Posted: Thu Mar 18, 2010 6:54 am
by isadora
Bonjour ... je suis attentivement ce forum depuis longtemps, car mon fils age de 24 ans et demi, il a ete diagnostique de SEP en juin 2009, mais en vrai, son SEP a debute silencieusement 3 annees en avant, ete 2006. Mon fils vit a Paris. Il a envoye de mail il y a 6 jours en Pologne et en Bulgarie. De Pologne il a recu de reponse, programmation pour 2011, sans lui preciser le mois. Mais que se passe-t-il en Buklgarie ? Pourquoi pas encore de reponse ? Qui pourrait me dire combien de temps on peut attendre la reponse ? ... et la liste d attente est arrive a quelle date ? MERCI BEAUCOUP et BON COURAGE a tous !

Posted: Thu Mar 18, 2010 7:30 am
by pinksapphire
TindraSweden wrote:Hello everyone :lol:
I'm from Sweden and I go to Bulgaria on 27th of April. I'm looking forward to finally find out if I have some problem with my veins. I'm curious if someone of you are going to be there at the same time as me?
If you are it will be nice to know for fun. Maybe we meet there and we can change some expirience with each other.
TindraSweden :roll:

I have an appointment on the 28th of April! One day after yours. You can write to me at petite_28_2000@yahoo.com We can talk more there instead of here. :D

bulgaria

Posted: Thu Mar 18, 2010 9:29 am
by caraboo
Hi,
I dont how you feel about this folks but I go to Bulgaria every year on holiday and dont get shots. I find Bulgaria really clean and the thought has never entered my mind to do it. Im booked in for 1st June and wont be getting shots. I already had a holiday booked there when Bulgaria came up. I phoned and they managed to get me booked at the hospital while on holiday. Hope this helps.

Karen

Posted: Fri Mar 19, 2010 7:23 am
by carambole
Thanks Karen,

A neuro told on a TV show that it was a really poor country "Tiers monde" he said.

What a judgment!

Viv

Re: bulgaria

Posted: Fri Mar 19, 2010 11:21 am
by pinksapphire
caraboo wrote:Hi,
I dont how you feel about this folks but I go to Bulgaria every year on holiday and dont get shots. I find Bulgaria really clean and the thought has never entered my mind to do it. Im booked in for 1st June and wont be getting shots. I already had a holiday booked there when Bulgaria came up. I phoned and they managed to get me booked at the hospital while on holiday. Hope this helps.

Karen

To each their own.....for me I figure I'm sick enough now I don't want to add anymore sickness. I'm sure you will be fine without the shots, I just want to take every precaution that I can. :) Congrats to you! You'll be liberated soon too :D

Posted: Sun Mar 21, 2010 2:45 am
by colapesce
hi everyone,
I finally received an appointment for June 2. Am so excited! Email arrived this morning at 10.36.
cola

I got my appointment!!

Posted: Sun Mar 21, 2010 5:34 am
by AnnaP
Hi Cola,

I share your excitment. :D :D :D I got the email I've been waiting for. My appointment is June 7th. Youppi!!!!!!!!!!

Anna

Posted: Sun Mar 21, 2010 6:14 am
by Jaguar
AnnaP
So glad you have your appointment. When did you make your request?

I made mine on the 26th of February, but do not yet have a confirmed date.

Posted: Sun Mar 21, 2010 7:00 am
by AnnaP
Hi Jaguar,

I made my request on Jan. 22nd. I'm sure you'll get your email...soon

Posted: Sun Mar 21, 2010 8:20 am
by carambole
I was so surprised this morning when I got the e-mail... I have an appointment June 6th. I send my mail february 19.

I'm excited but also a bit confused. There is so many thing to do.

Anybody from Montreal that have information about ticket price, visa, etc. ???

Thanks everybody.

Date's in!

Posted: Sun Mar 21, 2010 9:01 am
by robob
HURRAH! we got ours too. 28th June......

Now looking at this:

http://en.geyatours.com/02/403-42-30/index.html

looks quite comprehensive and is rec'd by the hospital itself.

Lots to do as you say. I'm really pleased that we are starting to get our dates through. Good luck everyone.

Robob x :D

Posted: Sun Mar 21, 2010 9:09 am
by AnnaP
Hi Robob,

Thanks for the info.


Anna















Vivianne: I guess Robob answered your questions

CCSVI - Non conclusive Doppler!

Posted: Sun Mar 21, 2010 9:20 am
by RoxanneLo
Hello Everyone!
I am new on this forum, however I have been reading your comments for a few weeks now and I find this group very interesting and helpful.

My brother has PPMS and is on a list for Bulgaria. Dr. Grodzinski kindly replied to my email and told me he should been seen in September.

My question to you all is about the Doppler Ultrasound. My brother had one yesterday and it was non-conclusive. Has this occurred to anyone else in this forum? Is it possible that the narrowing of the veins could be seen on an MRI or MRV? We don't really know where to go from here..

Thanks for your help! :-)