This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Dovechick

That is great news, especially the reference to pain in your legs, look out for shooting / stabbing pains that move around rather than remaining in one place. This indicates nerve pathways opening up and it's happening quicker than with most people so you can expect a very good new year for you and your daughter.

The decrease in nightime urination was reported many times in the pilot studies. My take on this is the higher body temperature while sleeping causes an increase in eveporation resulting in darker stronger urine output.

Please keep a journal and date everything you notice.

Merry Christmas

Andrew

colapesce

It is only obvious when the research has been done, and I agree it is pretty obvious why people deteriorate on flat beds and improve when the bed is tilted. Gravity is not fully understood, no one has put forward an explanation for it that encompasses how it drives life until now.

I have said it before and will repeat it now. This is no longr guesswork, the evidence over 16 years stacks up and here we are repeating the same simple change in posture and the results speak for themselves

No one with or without ms should spend a long time on a flat bed.

Andrew

This is my second night of sleeping inclined and I've noticed my legs hurt and my head hurts in the back of my head at the bottom of my skull when I get up in the morning. Is this a good thing or a bad thing?

maggie44 wrote:This is my second night of sleeping inclined and I've noticed my legs hurt and my head hurts in the back of my head at the bottom of my skull when I get up in the morning. Is this a good thing or a bad thing?

Not uncommon, the first two weeks can be pretty bumpy, stiff neck, headaches, pains in legs and arms, this can last for 2 more weeks in some cases. I always tell people they will probably be swearing at me in the first few weeks unless they opt for the 4 inch rise to begin with. Going for the full angle is taking the bull by the horns. People seldom expect any difference, so when something out of the ordinary happens they begin t realise there is more to this than just words.

Andrew

Thanks Andrew my styfoam is 6" and I don't want to cut it down so I'll just wait it out, its not something I can 't live with temporary. I'll keep informed how things are going. I just hope it disappears in a couple of weeks. Thanks for your help. maggie

Just reporting in: last night, tried bed at only 3" to start. Awoke more "awake" than usual, AND I dreamt and remembered it! I stopped having/remembering dreams several years ago. So, the inclined bed, even at half the recommended height, definitely had an affect. Will raise the height in a few more days and see what else crops up.

Merry Christmas everyone

Katie

This is an interesting post, we also remeber our dreams since tilting the bed. Does this mean that the brain is more functional on an inclined bed during sleep?

Would be very interested in seeing whether rapid eye movement stage REM is different on an incline. I suspect it is very different.

Merry Christmas to you and a very healthy and happy new year to everyone on the forum.

Hi Andrew, and others.

I am posting this again - this time in the correct thread

My bed has been inclined for about a month now, and it is really making a huge difference for me! The dizziness and headaches in the mornings have gone, and I have had no new MS stuff since I started.

I was diagnosed with CCSVI at dr Simka's some weeks ago, and when you think of it - IBT really makes sense in the CCSVI theory. I have a blocked left jugular, and so if I am sleeping inclined - the azygous veines are helping me draining the blood from my brain.

ALL of my MS-badness has presented itself in the morning - when waking up (when I was sleeping on a flat bed that is). I am convinced this is due to my blocked veine making it difficult for the blood to return from my brain.

It really feels good being able to wake up without having to worry about feeling new MS stuff.

I'm on 13 cm now - going towards 15 cm in a week or so. My wife is up there with me as well

Merry Christmas!

christian

Oh My!!!!

I always wondered why I stopped remembering my dreams. This is fascinating information shared here. Thanks so much!!!

Hmmm...

I wonder how/if LDN fits in with this? Does LDN affect blood flow?

I searched the site but so many threads popped up, maybe someone who knows can answer here.

I took it for 2 months and recall having some pretty intense dreams at first. These faded away as I became used to the LDN 3mg. (I do not recall dreaming much until then.) I did experience improved walking for the first 2 days which I wrote off to placebo effect - nuero thinks my body got used to it but did not recommend going to 4.5 mg.

I inclined my bed 2 nights ago, haven't noticed anythng (except sore muscles from the lifting!)but am determined to give it the full go. (Wife says she actrually likes it!)

I have been off the LDN for 2 weeks now and will restart next week if I can get it filled. Will let you know what happens when combining this to the inclined bed...

Also visited a thread here on TMJ which I believe I may have. My jaw pops often, and I experience a popping sensation across my back and neck when I raise and lower my left leg while lying down. Pretty weird! I will go back to chiro after the New Year to see if neck/back adjustments might help.

My husband has been reading here and decided to incline our bed for Christmas. We will sleep on it tonight for the first night.

Christian

Thanks for posting on this thread.

Vhoenecke

Can't remember in 16 years seeing my wife with rapid eye movement. Our grandaughter now sleeps inclined, her progress within a few weeks has been phenominal with her exceeding the normal development graph and passing babies thet were born before her. She gains 9 ozes per week yet not an ounce of fat. She is extrememly strong and forward. Sleep through the night too.

We have had her here several times and I have never seen her with rem either.

Andrew

Almostclever

How about leaving the medication off for 4 weeks? Just using the inclined bed method?

Think this would be better science than involving variables like ldn.

Just a suggestion.

Andrew

Wiggy

How was the first night sleeping inclined?

Andrew,

Thought about that (holding off on LDN) and will do.

Thanks!