This Is MS Multiple Sclerosis Knowledge & Support Community

Well my hands are shaky and my knees are weak
I can't seem to stand on my own two feet
Who do you thank when you have such luck?
I'm in love
I'm all shook up




Your right gwa elvis is the man

Noticed that my arms and hands are becomming affected now, can still use them but are getting shaky, when i go to pick up a glass i really notice it. Things are happening to me slow but steady and i am gratful for that. This disease is really something..

robbie,

Have you checked to see if any clinical trials that might help you are being held in your area?

gwa

oo

I have made an effort , Will eat , smoke, drink whatever now i am in the stage where i can do nothing about this, is there anyone out there that feels this way or am i the only one..

I wish i could roll into the hospital for sick kids and find a kid with a terminal disease and say i've had my fun now u go have yours take me instead then MS would mean something.

Robbie,

I think it's time that this thread was closed - it's not doing you any good or those visiting the site.

We're never going to be in a postion to answer the why is life unfair question. The vast majority of us who use the site have MS and have to deal with whatever it throws at us. It's a cruel disease but we all need to find ways to make it through another day. Many have offered you advice on diet, possible therapies to try and the ball is now in your court. Treatment options are limited for SPMS but do include Sativex for spasticity, diet to keep you healthy, Vit D supplements, possibly ABX, trials (Rituximab) etc.

I wish you all the best, but believe that using this site is becoming a very negative experience for you and we also need to think about those newly diagnosed who are coming to the site to find out about treatment options and to get a bit of hope for the future.

I couldn't agree more bromley i am a little to far along for this site maby when u get to where i am u too will have a different perspective on diet and vitimins and just the drugs in general. Without me here you can resume your hope and wanting for good things to happen and not have someone sharing the reality of ms and the feelings it brings. After all the master is back now and he makes the decisions so i will say it for ya Good Riddens ..

Hi Robbie
I think that you have a right to post how you feel. I think that we just want you to do something. Anything. We just don't want you to give up. It's true that I have no idea what you have tried in the past but you even if you see someone about your depression, it would be a positive step.
It is so easy for me to sit here and tell you that you need to take the following steps...but it is so hard for someone who is depressed to actually take action. Even if he thinks that my suggestions are valid. I have to say, I am one of those ppl that just does not like to hear the negatives about MS. You know that because I PMed you and told you that. However, I do think that you need to heal too. You need to deal with your emotions as well. I did not like reading your posts but as you say, you are a reality of MS. I have to deal with my feelings towards that. I know now that not everyone will be where you are. Some ppl will just deal with things differently and never get to where you are emotionally. So new comers can take comfort in that. No matter how disabled we are, we still have a choice as to how we want to live our lives. Depression can do funny things to ppl. Just get some help. We do care about you robbie. We just need some action. Try different things. You can not complain if you have not tried.
NN

Robbie,

I make no decisions but can only offer suggestions. It's up to you what you do but I see a downward spiral in your posts. Although it looks as if you don't care I think you do, and those of us who use the site care to. I just think that you might benefit from help that we can't provide.

The trouble with these sites is that that there tends to be a bias towards those relatively recently dx and in the RR phase. I know that GWA and Harry Z's wife have had MS for three decades plus and you are in your second decade. The site would benefit from a forum for those who have had this disease for years and probably in the progressive phase. They could offer advice that those of us in the RR phase cannot provide.

Repair strategies are coming and you need to be around when they arrive to appreciate your wife and that big dog.

All the best

Ian

Robbie
you are obviously in a lot of pain emotionally. And angry. And who can blame you. But remember MS may deprive us all of certain things- but it doesn't deprive us of the ability to make the most of what we still have- if not for our own sake for those that we love around us. Don't push them away. When they look at you they don't just see MS they see ROBBIE.
The people on this site care too and as most of us have ms or are v close to someone who has- we understand. It is scary, it is unfair, it just is. Please don't be irritated by suggestions- they are made in kindness not spite. And finally, for what it's worth, you look v handsome in the photo.
muu

But not as handsome as Bromley! Just thought I'd put it on the record.

And Robbie, my post today on stem cells for stroke victims shows the progress being made. Hang in there till 2010 and sue me if I'm wrong. Stopping progression and facilitating some repair is what they are striving for. You wouldn't want to miss the party when I buy Harry Z that pint of British beer that I've promised him. The beer in the UK is much stronger tasting than in the US so he won't notice the shot of Tysabri that I add to his pint.

Ian

wicked i just found a GREAT new avatar but it's way too huge so here's the link, enjoy!

http://www.keeptothecode.com/gif/concep ... _crew9.jpg

Pictures...pictures...pictures...I love them. Please post your pics ppl. Uhhhh...JL, not to scare you, but, you are a lot hairier these days...what have you been doing?
NN

jimmylegs wrote:wicked i just found a GREAT new avatar but it's way too huge so here's the link, enjoy!

Now there's a face only a marine biologist could love...

NHE