This Is MS Multiple Sclerosis Knowledge & Support Community

Dear Malus,

If you read the MS sticky tracking thread, Erika goes to Poland thread and the going to Poland thread, you will find lots on Dr. Simka and his excellent work.

Camilla

Hi Malus,
Dr Simka does eventually reply to emails. State your position clearly in a few words, ask for what you want and be patient. There is a waiting list now for treatment so it is not going to happen tomorrow.
If you want more information (anything I have collected) send me a private message and I will sent it to you.

Good afternoon TiMS,
I've just taken my last Clexane injection On returning home our post had arrived.I was greated by a letter from my NEURO. i taught.Not .Enclosed was a letter from him.

Dear Mr ???????,
I have been sent Form E112 for completion.Part of this request is that i sign it & that the treatment abroad has been recomended by me.Since i know nothing about the proposed treatment i am obviously not in a position to recommend it.When we spoke on the phone it wasn't clear to me that the treatment was a recognised treatment for multiple sclerosis.
Yours sincerely
???????
Consultant Neurologist

When we spoke on the phone it wasn't clear to me that the treatment was a recognised treatment for multiple sclerosis.

Q:Can anyone see a problem in the way that THE ABOVE line is worded?

He said to me a few days before i departed for my procedure,that he would SORT IT OUT & he actually listened to me when i spoke about CCSVI
Slainte Mo Chara
Edser & Anna

.

Camilla wrote:Dear Malus,

If you read the MS sticky tracking thread, Erika goes to Poland thread and the going to Poland thread, you will find lots on Dr. Simka and his excellent work.

Camilla

Camila Thank you very much for reply.I will for sure check it out sooner.
Happy Holidays.

Good afternoon TiMS,
HAPPY 2010
Slainte Mo Chara
Edser & Anna

Slanj to you Edser, as they say in Scotland.

Happy New Year to all of you wonderful people!

Isn't it wonderful to have hope? Even if this all turned out to be unfounded (not that I think it will be), this last 5 weeks or so of having true hope and better understanding of the disease has been incredible.

Happy New year to you too... I agree HOPE is essential. And mostly there is little hope for MS patients, and this makes so much sense even if we don't have a vast knowledge and experience base behind us. Some of us don't have the luxury of time to wait for the experience to become available.

I live with multiple sclerosis for almost ten years now... and before i met this forum i always felt alone in this.... sickness... now i have you all.... and i feel better than ever!

I wish you all.... the best for this next year!

I wrote to Simka...since two weeks... waiting for an answer;)

Thank you to everybody here ;)

The girl from Laval City in Québec Canada ;)

Babiezuique, Pleased that you have found some support at last, 10 years is a long time to struggle on your own with this disease.
I hope that 2010 brings you some good things... Health, Hope and Happiness.

Good evening TiMS,
CCSVI is now available in Tychy(Poland) kosteckj@op.pl
A Polish woman was talking to Anna on the Polish Forum.She was trying to make an appointment for her boyfriend with Dr Simka & he gave her the above e-mail to contact Dr Kostecki
Slainte Mo Chara
Edser & Anna

Edser wrote:Good evening TiMS,
CCSVI is now available in Tychy(Poland) kosteckj@op.pl
A Polish woman was talking to Anna on the Polish Forum.She was trying to make an appointment for her boyfriend with Dr Simka & he gave her the above e-mail to contact Dr Kostecki
Slainte Mo Chara
Edser & Anna

Thank you for good news!
I know Dr. Kostecki. He is young as well and very nice. He was doing my Doppler with Dr. Simka in August 2009 in Tychy.
In case somebody goes ther I can advise you Hotel Arena - close to hospital. It is a new, nice 3 stars hotel. Both reception girls spoke good English. Of course you can take taxi to hospital. The hotel does not have stairs - they have rooms on the ground floor as well. When you do your booking ask for it.
http://www.hotelarena.com.pl/index.php?t=&lang=en
When I was there I paid about 42 Euro for single room with breakfast.
If some of you go there, please say hi to Dr. Kostecki from me.
Town Tychy is close to Katowice.
Erika

babiezuique wrote:I live with multiple sclerosis for almost ten years now... and before i met this forum i always felt alone in this.... sickness... now i have you all.... and i feel better than ever!

I wish you all.... the best for this next year!

I wrote to Simka...since two weeks... waiting for an answer;)

Thank you to everybody here ;)

The girl from Laval City in Québec Canada ;)

Welcome & Happy New Year
Slainte Mo Chara
Edser & Anna

Edser wrote:

Edser wrote:Good Morning TiMS,
DAY 12
The bruising in my groin is gone.
I've got propper movement in my neck after the 1 STENT in my right Juglar.
My finger's are warm BUT there is a numbness on the tops of them.(I don't know is this a Positive 0r Negative thing)
Is there any IRISH people going for the procedure in Poland?
Slainte Mo Chara
Edser & Anna

Good Morning TiMS,
DAY 19
*********************Positive OR Negative*************************

I woke up this Morning @ 7.45am This is normal for me as i'm an early bird.My Mrs(ANNA) was still asleep.So i deceided to have a shave.The left side of my face was no problem,so i continued on.PROBLEM i could not shave under my lock's as i could not see where to put the razor I tried a few more times but to no avail ,so i deceided to stop as my pupil was moving much slower.In 1987 after a freak accident i lost the sight in my right eye(Detached Retina) so i'm a little lost at the moment.Time is a great healer so i'll remain very +POSITIVE+ as the procedure has/is working.
Slainte Mo Chara
Edser & Anna

***1 Mounth***02/12/2009-02/01/2010

Good afternoon TiMS

I just finished having a shave,ALL BY MYSELF There's an improvement in my right eye.I've not been out side the house in the last few week's as the weather is freezing & i'm affraid that the cold might affect my eye & that i might fall with the freezing conditions.My balance has really improved.I can't wait for this cold spell of weather to go so Anna & myself can get out & have a real walk.It's like been in prision my house is driving me crazy.
Slainte Mo Chara
Edser & Anna