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Posted: Wed Jun 16, 2010 4:12 pm
by bmk1234
Vivianne766 wrote:bmk1234,
Does the fact that people call and cancel make the line move a lil' faster for the rest of us who are waiting.
... oh so desperately waiting to be liberated. :roll:
I'm not sure, but one would think that would be the case.
bmk

Posted: Wed Jun 16, 2010 5:43 pm
by ndwannabe
Any TIMSers have had the procedure done by Dr. Siskin? Have they chimed in?

Posted: Wed Jun 16, 2010 8:23 pm
by SandyK

Posted: Wed Jun 16, 2010 9:25 pm
by ndwannabe
Thank you Sandy.

Posted: Thu Jun 17, 2010 6:40 am
by pklittle
I just got back yesterday from Albany. I had testing and treatment by Dr. Siskin on Monday 6/14/2010 in the hospital up there.
I had a small stenosis in the right jugular, which he angioplastied. I had one small and one large stenosis in the left jugular, which he also angioplastied. I had no stenosis in the azygous. No stents.
Unfortunately, I haven't seeing any improvements in my MS at all. 8O
I am home now, and completely drained. I actually feel worse than ever, but I guess that is from the travel, etc. Time will tell.
I'm thankful I was able to have this done, but obviously distraught that I see no improvements. :cry:

Dr. Siskin explained that there is still much to learn about all of this and that results of the procedure are varied.

Posted: Thu Jun 17, 2010 7:53 am
by AlmostClever
Thanks for sharing, PK.

Sorry to hear nothing has happened :(

Posted: Thu Jun 17, 2010 10:44 am
by Vivianne766
pklittle,
Give it some time and just try to take it easy. The good thing is that there were narrowing that are now fixed.
:wink:

Posted: Thu Jun 17, 2010 11:38 am
by pklittle
Vivianne766 wrote:pklittle,
Give it some time and just try to take it easy. The good thing is that there were narrowing that are now fixed.
:wink:
Thank you. I'm trying.

Posted: Tue Jun 22, 2010 7:04 am
by BooBear
Got my appointment!

WOOHOO!!
Aug. 13 with Dr. Englander. I am so stoked!!!!!!!

Posted: Tue Jun 22, 2010 7:12 am
by mshusband
I'm sure these next 52 days will seem like forever ... but best of luck to you.

Posted: Tue Jun 22, 2010 7:18 am
by BooBear
Thanks, mshusband! Again, my only expectations of the procedure are to halt progression of the disease- anything above and beyond that is just a bonus!!!!

Posted: Tue Jun 22, 2010 7:21 am
by SofiaK
I wish you the best Boo! Wonderful news, indeed.

Where does Dr. Englander work? I've never heard the name.
Sofia

Posted: Tue Jun 22, 2010 7:35 am
by mshusband
Weren't you trying to go local?

Where did that end up?

KEEP PURSUING IT (please) - that's the advice I can give. Keep that person involved, even if you do end up going to Albany ... because it may help someone else. It brings another into this effort.

Yes, I agree with your assessments and expectations, We're in the same boat 6 days away from my wife's liberation. We don't know exactly what to expect. We hope for the best, we don't know what to expect, it's nerve racking.

On a side note, when it rains it pours - I guess. I just got a call from Marta at Euromedic in Poland with Dr. Simka for July ... I got an email the other day about an appointment with Ameds in Poland for July. And we're up for Dr. Siskin in August. All happening after we firmed up our other appointment which is Monday 6/28 at 9 AM ...

Posted: Tue Jun 22, 2010 8:46 am
by Trish317
BooBear wrote:Got my appointment!

WOOHOO!!
Aug. 13 with Dr. Englander. I am so stoked!!!!!!!
Woohoo!!!! Great news, BB! Now they have three doctors performing the procedure there!

Posted: Tue Jun 22, 2010 9:15 am
by bmk1234
SofiaK wrote:I wish you the best Boo! Wonderful news, indeed.

Where does Dr. Englander work? I've never heard the name.
Sofia
She is a partner with Dr. Siskin. She did 1/3 of my procedure - the Azygos.
Blaine

http://www.communitycare.com/MedicalSer ... er_Bio.asp