This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everyone,

What a shocker to see this thread still going strong. Arron, you are quite the administrator, and a great welcome committee!

I'm sorry I have been away so long, and hope to do a better job of stopping in and saying howdy!

Sincerely,

hey there
my computer name is redhairandtemper but u all can call me chris..i am 34 have 5 kids 2 cats and horses i take care of that might as well be mine...i am still waiting for the diagnostic...my neurologist is being very careful and covering everything..i have had no feeling on my right side since the middle of august and walk with a limp now because of it...i just went to the eye doctor who has just informed me i am losing my eyesite in my right eye i am currently at 60 percent instead of a 100 precent..is going to start me on eye drops to help slow down the damage but doesnt promise me i wont lose it completely here in a yr if not less..i work full time right now which is a challenge cause its in the health field and i am still waiting for them to decide is this is ms...everything so far is coming back negative but am going for another mri here in a month or so and have a neuropsych test coming up...sometimes it feels like i have hit a brick wall..cause everyone is just shrugging thier shoulders and saying hmm i just dont understand what is going on with you...hopfully soon they will make a determitation for me..the neuro doctor just wants to eliminate everything else...to find this site was a blessing to me...i read everyones descriptions about things and some of the stuff i have so i dont feel like i am going crazy..okay enough babbing from me...thanks for reading it...lol

REDHAIRANDTEMPER
My opinion. I would not wait for the dx to start a treatment plan. I would switch my eating habits to low saturated fat. I would get tested for allergies as well as intolerances and remove them from my diet. I would not smoke nor abuse alcohol nor caffeine as well as absolutely no aspartame. I would add cold water fish at least 3-5 times per week as well as turmeric a 1/2 tsp per day. I'd also make sure to stretch as well as some cardio each and every day. Hubby (John)had your symptoms and they are gone other than the ON as we were living in denial at that point and did not act when we should have. Just an opinion good luck.

thanks for the imput there...it helps to get a idea of the different things i can be doing..have changed my eating habits a little..surprising didnt have to many bad ones to break...love fish so have been doing that..i take cq10 and fish oil everyday...the only thing i cant break myself of is my chocolate habit...dont thing i could break that completely anyways....lol...

chris

Hubby takes Q10 (60 mg)as well as other vitamins and minerals.

Hi, my nickname is Mamadog. I was diagnosed with RRMS in May, 2004. It has been such a strange experience. I am on Avonex.

Mamadog,

Welcome. I got the same dx, the same month, the same year.

Hope you are doing well

Ian

Hi Chris and mamadog-- welcomes to you both.

I jut thought I would introduce myself briefly. I am 25 years old. I had my first ms relapse (optic neuritis) at the age of 18 while I was completing my first year of university. One and a half year later, I got a second optic neuritis. After my second ON, I had an MRI which led to a definite diagnostic. Five years later, I still don’t really have any visible symptoms. I guess the only symptom that really has had a big impact on my life, for past 7 years, is intense fatigue. I have been dealing with dizziness since my last relapse (2 months ago) but dizziness appears to be diminishing with time. I hope it completely goes away! Dizziness is NOT a fun symptom.

After receiving my diagnostic, I started taking Rebif but I could not tolerate the side effects so I switched to Copaxone and I have been taking it since.

Hi flipflopper, welcome to the site!

My name is Dave. I am a substitute teacher here is Wisconsin. I am looking to starting a lifestyle coaching business to help others the way I have been helped-with a focus on God. I think God wants me to share with others the info that has helped me literally be able to stand again. I feel my faith has been a very important part of my healing (both physical and emotional).

I am not using this forum to sell probiotics or my services. I am offering people my research paper that has taken about a year to compile for free because I want to let people that have gone through similar suffering know what has helped me. It is my unsupervised research, and is open to your feedback and critique. Thank you for understanding my intentions.

You can read it at

Blessings,
Dave

LOL

Highlite, CTRL-C, CTRL-V

Hi,

I was diagnosed with MS May 2005 and haven't been brave enough to post any messages on this board yet! Anyway I thought I'd be brave and start writing as this looks like a great website.

I'm 34 and living in North London with my boyfriend.

Have got a dodgy left leg that likes to drag itself along nowadays which is reeeally annoying!

Am not taking any prescribed medication as I'm not eligible, apparently I've only had 1 relapse which isn't enough!

It's nice to know there are other people to talk to out there as it can feel very lonely at times.

xx

welcome
i know the feeling there...i have a right leg that has been doing it now for a couple of months..so yes very frustrating...i use a cane on the weekend..i wont use one at work..just not comfortable with that yet..so i walk with a limp and whats worse is by the end of the day its really bad..so i do understand....welcome again...

chris

Welcome Casey,

I'm from South of the river and but now qualify for the DMDs as I've had my second relapse.


Ian