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Re: Hello
Posted: Fri Jun 21, 2019 2:39 pm
by Zyklon
Small update:
Close to becoming a Q-Grader (arabica coffee grader/expert/gourmet, 5000 in the world, not sure about any with MS)
For 1 week, I was able to wake up and sleep just like a normal person. So I guess it is all psychologic. Almost the same regimen.
Really intense training, lots of effort. My hot tolerance is good, sweating like normal. Walking plenty.
I am ready for my second attack and beyond ;)
Re: Hello
Posted: Tue Aug 06, 2019 4:17 am
by Zyklon
Nothing to update. Visiting forum almost every day.
Listening Slipknot's new album: "We are not your kind". My vagus nerve is perfectly happy
Re: Hello
Posted: Fri Aug 09, 2019 4:26 am
by jimmylegs
enjoy!
Re: Hello
Posted: Fri Oct 18, 2019 10:43 am
by Zyklon
Small update
I have been working full time for 1months. It was something that I had doubts about. Tests soon. No regimen change for months.
Daily visiting tims. Take care, stay healthy ;)
Re: Hello
Posted: Fri Oct 18, 2019 12:49 pm
by jimmylegs
congrats!
Re: Hello
Posted: Mon Jan 13, 2020 1:57 pm
by Zyklon
Yeeeeey I have Influenza A/H1N1 aka swine flu. Not much fever, bad cough, sore throat, Rebif kinda hits me more, something is going on with my body but nothing to worry about. Only cough syrup, paracetamol, vinegar.
Re: Hello
Posted: Wed Jan 15, 2020 4:33 pm
by jimmylegs
hope you're feeling better! how's the rest of your regular maintenance regimen going, other than the rebif and the current cough syrup, pain killers and vinegar?
Re: Hello
Posted: Thu Jan 16, 2020 10:57 am
by Zyklon
My regimen is almost the same. Tests and yearly MRI in the next month.
Re: Hello
Posted: Thu Mar 26, 2020 11:41 pm
by Zyklon
Covid-19 has kinda messed me up. I almost managed to discontinue citoplaram until 2 days ago. I had 1 major and 1 mild panic attack in the night. I have doubled my dose to 10mg and gonna continue for a few months. I have been staying at home for 9 days. Annual checks have postponed.
Really bored
Re: Hello
Posted: Fri Mar 27, 2020 3:48 am
by jimmylegs
hi
no idea what your regimen and status is like right now, but this trial may interest you:
fft:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6298677/
Re: Hello
Posted: Sun Feb 28, 2021 5:38 am
by Zyklon
Yeeey long time without a post
Everything going the same. I try to stay home. Still no MS-related updates. No Covid-19 for me.
I have opened a Turkish and English blog. thisisms.com is my first love
I will share everything I have shared here. This is the place where I will share something new first.
What is the Tims policy for such outside blogs? Can I give a link to Tims from my blog?
Stay safe, take care ;)
Re: Hello
Posted: Sun Feb 28, 2021 6:33 am
by NHE
Zyklon wrote: ↑Sun Feb 28, 2021 5:38 amWhat is the Tims policy for such outside blogs? Can I give a link to Tims from my blog?
Sure.
Re: Hello
Posted: Fri Mar 12, 2021 6:41 am
by Zyklon
Re: Hello
Posted: Fri Mar 12, 2021 9:12 am
by NHE
Re: Hello
Posted: Fri Mar 12, 2021 12:12 pm
by Zyklon
I am going to update the English version as long as I have time. Both blogs will be the same.