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Posted: Tue Apr 20, 2010 8:38 pm
by Salvatore24
babiezuique wrote:Read this: '' This ccsvi thing makes me remember of this therapy of hot bath someone said ten years ago said it was miraculus and every body wanted to have this ''bath'' therapy done and where willing to go anywhere around the world to have it''
This is from Dr Jean Marc Girard ( my neuro)
I think that is a very poor comparison made by your neuro. How can you compare a bath to a surgical procedure? Have you been in contact with him to voice your thoughts?
Re: Second Hand
Posted: Wed Apr 21, 2010 12:36 am
by sbr487
FlashHack wrote:sbr487 wrote:...The issue starts when they start opposing subjectively and make misleading statements ...
Just my thoughts. For record, I always enjoy reading your posts.
Can't disagree with anything you said (especially the compliments
). My point was simply to steer the thread away from demonizing EVERY neuro and to provide a little perspective. Incidentally, it actually took several sterile and unsatisfying exchanges with my Dr. B before he opened up and wrote that simple heartfelt response. It's when they try to hide behind their big Latin words that we start getting suspicious.
Three things we're all waiting for:
1. Liberation
2. Corwardly neuro's to grow a pair
3. Dorktors to get MS (get it?)
Well said. Your writing never fails to impress me (though Lyon and Johnson are top two in my must read list) ...
Be around and be well ... we will clear this hurdle as well ...
Posted: Wed Apr 21, 2010 9:10 pm
by NZer1
Is it true Spin Doctor 101 is a prerequisite for the the title Neurologist
Posted: Thu Apr 22, 2010 4:48 am
by babiezuique
If i would call all the neuros to tell them what i think about their way to see ccsvi.... that are actually saying stupid things to their msers and to the media... i would say things like costumenastional say but ten times more vulgar.... because it drives me very angry to realise that all the notoriety they have...is in reality for people that are not professional at all...
Posted: Thu Apr 22, 2010 5:20 am
by Asher
Guys, I share the underlying emotion. And, I would like to draw your attention to the following quote by Cheerleader:
“I really want to encourage research and thinking, rather than arguments and petty, personal attacks on this site. That's how we started this CCSVI journey, and that's really how I hope we'll move ahead.
It's been incredible seeing the variety of doctors involved in trying to understand MS. Dr. Zamboni's Bologna conference brought together geneticists, vascular doctors, MS specialists, and imaging researchers. As patients and advocates, we can help facilitate greater knowledge by bringing doctors together and taking them the published research.”
I encourage everyone to read the ‘Connective tissue Disorders, Collagen and CCSVI’ thread. Let’s beat the ‘so called scientist’ with their own stick.
Posted: Thu Apr 22, 2010 5:51 am
by costumenastional
I strongly agree. It s rather cofusing for me AND I D LOVE for anyone who understands better to share in that post
Posted: Thu Apr 22, 2010 6:21 am
by Asher
Thank you costumenastional, from Cheerleaders post it looks like we are getting much closer to really understanding the underlying mechanism of CCSVI. Really exciting.