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People take risks on unproven procedures all the time - Botox swept in and no trials have ever been performed to my knowledge. Makes lots of money though!

Yes trials are necessary but I just do not understand why CCSVI brings about such venomous rhetoric from so many medical professionals. I am mystified why a procedure that is relatively safe with a possible upside to MS patients has been held to the flame so readily.

Just does not make sense.

Drury

I have a suspicion its a case of "follow the money". Of course that's just my opinion.

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Good point Lyon. I never thought of that but with people being so sue happy what doctor in their right mind would perform a surgery that has not been proven.

Right now the biggest related cases I have heard about are a class action against people for offering Liberation and a Human Rights case in Canada.

What doesn't make sense to me is that it is not being offered to the 1 a day in Canada and 10 a day in the US who are on their deathbeds anyway. I think their co-operation will be there, and all the legal documents will be air-tight. I also think fear-mongering has been a problem, and I would like to see (maybe from Kuwait?) a paper published on the safety of Liberation.

People on this site could speak very compellingly on the very very very rare pitfalls.

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Lyon,

I am not sure I would call it a cult following. I would have said people who are desperate and willing to go to extreme lengths to have some control over their disease.

I am not buying the suing thing. People have procedures everyday that could have adverse side effects even when proven. In the meantime 5 more cases of PML from Tysabri.........

I just do not understand why a potentially new medical breakthrough has not been embraced by the medical profession and given every opportunity to be tested until proven otherwise

Could it be that CCSVI was discovered by a doctor in Italy and that is just too much for all the highly esteemed establishments to bear?

1eye

Absolutely.

Drury

Yes, but even with a guesstimate of about 1/2 restenosing and perhaps needing further ballooning, the CRABs only work about 30% of the time, so having restenosis occur half the time doesn't seem so bad when 50% have their veins remain open, whatever benefit that may result in. 50% failure rate doesn't seem so terrible in light of the CRABs only helping about 30% of the time.

Lyon,

Good points but are there any proven treatments that ALWAYS work?

eric593

Those were my next points thanks.

Drury

It was over a 100 years ago that the vascular theory surfaced and technology is finally able to allow us to pursue it.

Don't you think its about time?

Drury

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Lyon wrote:Not to be pessimistic but in the name of accuracy, "liberation" has yet to prove to EVER "work".

What about Dr. Zamboni's endovascular treatment trial? He got positive results.