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They only did the head, not the spine. I know this could be other things but with them ruling out MS could be related. It’s just like the article you attached. I have some shoulder pain from an old injury on the left side but this is something totally different. It’s annoying and it hurts. I’m trying ice and Motrin now. I still have to go back to work. Night 3 of 4 in a row
Re: Not sure what to think
Posted: Wed Aug 29, 2018 2:27 pm
by jimmylegs
i asked re spinal because i had searched for lhermitte's in assoc w cavernoma and this came up (only a case study but interesting)
Thank you for looking that up! You’re awesome. I find it very interesting. It’s like I’m my own case study. My doctor will love when I bring in all this medical literature next week....;)
Re: Not sure what to think
Posted: Wed Aug 29, 2018 3:34 pm
by jimmylegs
np
and yep dr internet is everyone's favourite - said no doc ever lol
Re: Not sure what to think
Posted: Tue Sep 04, 2018 7:57 am
by vortexmama79
See neuro today at 4. Trying to think good thoughts
Re: Not sure what to think
Posted: Tue Sep 04, 2018 3:26 pm
by vortexmama79
Well I have “spots” on my mri. He wants a mri of neck and spine now. He’s says I’m too young to have these spots for no reason. So if I have spots on the next mri it’s pretty much MS. If not they will watch me closely.
I’m trying not to cry and waiting for another mri and the results is going to do me in
Side note: the cavernoma on my mri is normal he said. Been there since birth
Re: Not sure what to think
Posted: Tue Sep 04, 2018 3:59 pm
by jimmylegs
ok deep breaths then. lots you can control in order to not be like a typical ms patient. chin up!
Re: Not sure what to think
Posted: Tue Sep 04, 2018 4:01 pm
by vortexmama79
I know it’s jyst scary. I don’t want to end up being a burden to my husband and kids
Re: Not sure what to think
Posted: Tue Sep 04, 2018 4:06 pm
by vortexmama79
I know I’ll have to change a lot of things and I will. I’ll be a damn warrior. But I get to have a pity party for a little
Re: Not sure what to think
Posted: Tue Sep 04, 2018 4:18 pm
by jimmylegs
you won't be a burden, rock on xena ;) !!!
Re: Not sure what to think
Posted: Tue Sep 04, 2018 4:52 pm
by vortexmama79
Re: Not sure what to think
Posted: Sun Sep 09, 2018 6:48 am
by jimmylegs
so i had my super fun c-spine mri yesterday. it wasn't as annoying as cranial on wednesday.
one of the scans had a good beat, had me mentally accompanying it with 'safety dance' lol
results soon. i'm getting my own copy of the discs for both, including the reports. last time was a hot mess lol. what i get for being lazy w self care!
Re: Not sure what to think
Posted: Mon Sep 10, 2018 12:48 pm
by vortexmama79
Thinking good thoughts! I created a little “beat” during my last MRI too!
Still waiting to schedule my next MRI
Re: Not sure what to think
Posted: Thu Sep 20, 2018 4:58 pm
by jimmylegs
hope results are good!
Re: Not sure what to think
Posted: Fri Sep 21, 2018 3:27 am
by Zyklon
During my last MRI, I listened Rammstein all the time. Next time Slipknot haha