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Posted: Tue Dec 01, 2009 11:57 am
by wonky1
Hi LR
I'll be on 100mg of Clexane every morning for 30 days.

:D

Posted: Tue Dec 01, 2009 1:04 pm
by xia
Hi Wonky,
Brilliant news!!
So pleased you are doing well :D
Hoping to head to Poland myself, I'm just nervous thinking about it!
Take care and keep improving :D
xia

Posted: Tue Dec 01, 2009 2:04 pm
by LR1234
Cool thanks Wonky

Posted: Tue Dec 01, 2009 2:29 pm
by Rainbolt
Wow Wonky!!! Simply WOW! Sounds like it was a very easy thing for you and that you're so happy with it and that makes me very happy for you and hopeful for me someday getting checked out!!

New here But...

Posted: Tue Dec 01, 2009 4:11 pm
by TaraLee
My MS sister Rain gave me a link to here showing me that someone with PPMS had success with this new treatment.
I too have PPMS and was hoping it was a treatment for us too. Seeing there is VERY little to be done for us!
I am so happy for you and hope you enjoy and ravish in the feedom you now have!
Lord please bring it the rest of us and hurry!

Posted: Wed Dec 02, 2009 1:27 am
by wonky1
Firstly Xia, there is no need to worry about the procedure, I actually enjoyed it.

New dawn new improvement. My sense of smell and taste have returned.
I didn't realise they had gone but really noticed them coming back.
I have also started sweating.
Yesterday I thought maybe I had forgotten to put my deodorant on because there was body odour. This morning I woke with my head damp with perspiration and I realised why I was smelly yesterday.

I can now have hot showers so it's not a problem. I really tested that this morning by turning the temperature up to nearly scalding, it actually felt nice.
While I was washing my hair there was none of the sick giddy feeling I used to get moving my head around. I then tested that by making myself giddy on purpose, I did not feel sick though.
:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

Fantastic News Wonky!

Posted: Wed Dec 02, 2009 2:53 am
by crocky
I have been reading your posts, I'm so happy for you. I'm hoping to go to Poland next year and your posts do much to fill me and many others with hope and confidence.

Posted: Wed Dec 02, 2009 3:39 am
by ErikaSlovakia
wonky1 wrote:Firstly Xia, there is no need to worry about the procedure, I actually enjoyed it.
I was already scared I was the only crazy one :D
Erika

Posted: Wed Dec 02, 2009 4:44 am
by xia
Hi Wonky,
Its the thought of needles I guess!!
Great news about the hot showers!
I hope you continue to make good progress :D
xia

Wonderful Wonky

Posted: Wed Dec 02, 2009 6:30 am
by Dovechick
Hi Not so Wonky M,
I'm really pleased to hear that everything went well and that we need not worry. I do hope that you see some more significant improvements in the next few weeks... Keep us in the loop.
I have been in touch with Dr Simka and he asked me to wait until the 10th until he had seen another UK patient, but in view of what you say and that he must have some idea about UK patients now I might get in touch with him again sooner.
As you said to me earlier the waiting is the worst.

PS I somehow posted this as a new topic (silly me) which I have now deleted. But it all bears saying twice in any case.

Posted: Wed Dec 02, 2009 7:34 am
by Nees
A membrane patient too, kinda reassuring to know I'm not the only one! And great news that you're starting to feel better, here's hoping you go all the way!

Posted: Wed Dec 02, 2009 12:40 pm
by wonky1
And there's more.

Improvements since liberation 26 Nov' 2009


1. My bladder no longer goes into spasm. – From day 1
2. Myclonic jerks in the evening and at night have stopped - From day 3.
3. My mind is clearer and sharper - From day 4
4. I no longer choke on food or fluid, even if I rush – From day 1
5. My voice is strong and clear - From day 4
6. Today I had my first hot shower in 13 years. Steam would normally paralyse me but there were no problems – From day 4
7. I am less fatigued –From day 4
8. I have started sweating again – From day 1, really noticeable from day 4
9. My sense of taste has returned – From day 6
10. My sense of smell has returned – From day 6
11. My pride prevents me talking about a well known male M.S. problem that has something to do with lead and pencils - Big improvement from day 1, well kinda medium.

:D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D :D

Posted: Wed Dec 02, 2009 12:53 pm
by Dovechick
Better and better. I'm so pleased for you. Keep it coming.

Posted: Wed Dec 02, 2009 6:12 pm
by Brainteaser
XX

Posted: Wed Dec 02, 2009 6:19 pm
by Lyon
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