This Is MS Multiple Sclerosis Knowledge & Support Community

cah wrote:Buffalo Neuroimaging Analysis Center (BNAC) awarded the 2010 Fellowships to Dr. Ondrej Dolezal from Czech Republic for duration of six months.
But I can't make head or tails of it. Apparently they fund a CCSVI-Study in Czech Republic?

ErikaSlovakia wrote:...a doctor from Czech Republic went to the USA to train Doppler and I think in April or May this year couple of MS patients in Czech Republic are supposed to go for Doppler as well. It is organised by an MS center in Prague. I do not know more and I do not think there are any official information about this.
Erika

mshusband wrote:So ... when do we expect the results of the Buffalo study ... seriously.

gauchito wrote:Hello everyone! I am writing from Argentina and new in the site. I received yesterday an email from Buffalo for I had applied for first
test that finally did not occur. It is a letter from Dr. Zivadinov. Let me share some interesting paragraph:

"I write to you today as researchers from the Buffalo Neuoroimaging Analysis Center (BNAC) and the Jacobs NeurologicalInstitute (JNI) at the
University at Buffalo are completing their analysis of the first
of several studies on chronic cerebrospinal venous insufficiency(CCSVI) in multiple sclerosis (MS). In a few weeks, we will announce the findings of CCSVI prevalence in the first 500 subjects, who participated in the study, Combined Transcranialand Extracranial Venous Doppler (CTEVD) evaluationin MS and related diseases.We believe our CCSVI studies
testing Dr. Paolo Zamboni’s controversial CCSVI theory will
result in groundbreaking discoveries in the field of MS."

Although not official yet, very promising words. I also learned that they will test a second group, they implemented a diagnostic center for MS sufferers, and will also test a different therapeutic approach other than Zamboni´s and Dake´s

hold you breath!

AlmostClever
Family Member
Posted: Wed Feb 10, 2010 12:00 am

So it looks like Phase I went well enough to go to launch!

BNAC is taking 30 patients for the Liberation Procedure!

http://www.bnac.net/?page_id=534

(Sorry if someone already posted this!)
_________________
Dx'd 2005 no label MS
Dx'd 2010 PPMS?
Rebif, then Copaxone & LDN

AlmostClever
Family Member
Posted: Wed Feb 10, 2010 12:14 am

BNAC:

We are excited to announce a new pilot research study conducted by the Departments of Neurology and Neurosurgery to evaluate the safety and effectiveness of intravascular angioplasty for the treatment of venous narrowing in the treatment of Multiple Sclerosis (MS).

Thirty (30) MS patients will go through a two phase study which will include selective Venography followed by a balloon angioplasty procedure. Study testing will include Doppler ultrasound, MRI with MRV, physical and neurological examinations, CT Angiogram (CTA) of the head and neck and CT Perfusion (CTP) of the head. All of these tests will be performed at baseline (prior to any treatment) and at 1 month after treatment. A subset of these tests will also be performed 3 and 6 months post treatment.

While we are only accepting 30 people, we are hopeful this treatment plan will be so successful that we will be able to offer it to many others. You can provide your contact information for immediate entry into our database by completing a form at: http://vovici.com/wsb.dll/s/8727g42d66

We know how exciting this plan is to everyone but we kindly ask people to complete only one contact information form per patient. We anticipate a large response and want to be sure that we can respond to everyone. For updates, please continue to visit us at www.bnac.net. We plan to provide as many updates as possible through our website. Thank you for joining us on this journey.
_________________
Dx'd 2005 no label MS
Dx'd 2010 PPMS?
Rebif, then Copaxone & LDN

10yearsandstillkicken wrote:much less than 100% and 29% of controls had it as well. I would like to know if those 29% had any issues like cronic fatigue or restless legs etc.