This Is MS Multiple Sclerosis Knowledge & Support Community

Michael and the kids are tearing the house down right now. He is running, picking them up, throwing them on the couch. Been going on for 20 minutes straight. AND he's enjoying it. This does not happen in my house!
They (and he) are SCREAMING and laughing and he's not yelling at them to be quiet (noise was almost painful to him) . I am trying not to cry...

That sounds wonderful, Kacey. Being on the other side (sometimes pained by my children's noise) I can relate too well.

edited to add: you know, I'll call Mehta tomorrow and get on the list if possible. I'd rather do this close but I also want to get it done, period, and hey, it's closer than Poland....

hi icalled dr mehta and now am on the list to do trials in february they were quite nice Said they have gotten a ton of people calling. Thanks I want to jump around with my kids!! Barbara

Wanted to clear up my earlier post where I was crying because Mehta
s office called to cancel my 2/4 and left it on my answering machine.

I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight. I was elated.

I think maybe starting out with balloon tx is the way to go for me. If I need stents in the future so be it.

I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes. I took a picture of it but cannot seem to post it.

Will leave word on here after my appt. (They said sometime in March)

kc

Such wonderful things are coming this way! You know, I laughed at my sister when she(years ago) said that Sylvia Brown (psychic who goes on Montel) said there would be a breakthrough for MS in 2010!
Jeez, maybe she really IS psychic! LOL!!

I've been away from the board recently and maybe I missed something even though I've been trying to catch up, but I thought that Dr. Mehta was just doing testing. Is he also doing the procedure if stenosis is found?

Sorry - I searched Kacey's profile and found that her husband did have procedure by Dr. Mehta. Wonderful.

Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!

I just cannot let myself go back on Tysabri or Novantrone without knowing if I have venous stenosis or not. And if I do have stenosis . . .

What if some, or all, of my stenosis is treatable?
What if some, or all, of my symptoms can remit partially, or fully?
What if some, or all, of my quickly advancing progression can be halted before it's too late?

I just have to take this chance, a simple angio of a chance. Yes, Kacey, you are my angel, for finding Dr. Mehta. As you know, I started this thread as a special way to thank you -- but just you wait until after I have the testing/treatment!

Luv, HappyPoet

kc wrote:I called the next morning and was put thru to his researcher who stated that they were taking February to get the protocol they were going to do straight.

I actually found this encouraging, that they are putting in a month's worth of effort to get it right.

I called this morning and have left my contact info with his secretary, Megan.

HappyPoet wrote:Kacey, you're an *angel* to so many... I hope it's a wonderful feeling for you!

yes to that! Thanks from me too, Kacey!

I'm a praying gal so I will be praying real hard that this study goes through. I already was signed up but got canceled from Dr. Haacke so I am really hoping there are no setbacks with dr. Mehta's work.

Hello,

This doctor sounds wonderful....is there an email for him? Does accept emails or only ph calls? And is he still accepting people for his study?

thanks,
zina

Re: Dr. Mehta

I called and was given an e-mail address

wilcoxm@albanyvascular.com

Write: MS Research Study in the subject line

Her response says that I have been added to the list of patients that they will contact in March to begin evaluations. Not sure how long that list is but it seems like a very positive response. This was all done today.

I am feeling hopeful.

That's great! Congrats!
When did you e-mail her? I might resend an e-mail since I haven't heard.

kc wrote:I noticed that when I am having a bad day my right eye lid kinda droops. I initially chaulked it up to aging, but there is a distinct diff between my righ and left eyes.

No idea what it is, but I have that too. I brought a picture to my doctor in the beginning...yes, it was vanity that led me to the doctor and when I mentioned that it fit in with all my right side weird differences (weak foot, pain in my hip, vision issues)...she got real interested, ordered an MRI, and next thing I knew I was at a neurologist getting an m.s. diagnosis.

Anyway, if the lid droops enough that it blocks a certain percentage of your pupil, then it qualifies for eyelid surgery covered by insurance. Mine's not bad enough, but it still bugs my vanity.

annad wrote:That's great! Congrats!
When did you e-mail her? I might resend an e-mail since I haven't heard.

Let's see...I emailed at 2 p.m. and heard back at 2:43 p.m.

I think you missed the m in her email address!