This Is MS Multiple Sclerosis Knowledge & Support Community

5-7-10 Last night was like the nights before my Liberation. How scary that was! My legs starteded the twitches and tremor along with the body shaking and that horrible MS hug.

The rushes of heat liquid through my heart and chest were as bad as they were when I was having that spiral worsening of the disease. My balance became very wobbly and I was just miserable.

Going into the procedure this time was less troubling mentally. I knew all the nurses and doctors and the know me. So hugs all around when I walked in..although I did need my cane this day and I hadn't needed it in a week.

Anyway same as before except.................. The top part that appeard to have been collapsed had totaly shut down blood flow to the vien and the blood was going back up and trying to go around it's old route. (Thus that hot liguid sensations to the heart-NOT anxiety folks, that's your heart not getting the blood back to it. I will be researching that more in depth.)

The 'old' stents had to be removed as well as clots that were starting to form. Balloons were tried again, as the Dr. and I had discussed it before the surgery that since he was going in we should try balloons.

Well my veins are just being very difficult and balloons just wouldn't stay open and stents had to be used again. He moved it up to a higher area in the confluens of the left jugular and the other has been lowered in the clavical area of the jugular.

Well, then the center was collapsing so 2 more were placed center. Neuro-surgery was on stand by just in case, but wasn't needed. Let me tell you, I'm just a difficult case, this is all not usual. Remember how bad my vein was to start? Dried blood clots in a live human body.

This time after the procedure I needed a shot of morphine. The pain in my ear was horrible as well as in my neck. But, I didn't need my cane to walk out of the hospital again! The burning pinching pain that started down my arms and legs again was gone, the pressure that had built up in my jaw and left face is gone again.

The long trip home was rough for me, every bump in the road radiated through out my body as I dozed in and out of sleep. When I got home I popped you all a note, drank a couple of pain pills and went to bed.

5-8-10 Wow! I had dreams last night! Still in stiff pain today but getting better again. My balance is back! My boyfriend hired all the 'kids' (17-24 yr olds) to babysit and wait on me.

This time around was very difficult and I'm tired and weak today, but will need more quiet healing time. I suppose things happen for a reason and you all need to know not to take this lightly.

Not meaning to back off, but to make sure you are going with a very skilled doctor and facility that can back your doctor up. Just more reason why we need to get everyone taken care of as close to home as possible. Not everyone will fly through this with ease.

I'm thinking that those of us with more extensive damage and disease in the first place are going to have a more difficult time. Probably because we have been left untreated so long and just more of an indication as to why we must pust ahead. Time is not just brain, it's vein!

bluesky63 wrote:I read earlier in this thread that "professionals" look for signs of "faking it" in these videos. I assume that means doctors, and I can understand that, and I can appreciate that.

But in my humble opinion the people who have MS themselves are the real professionals about their own symptoms, and I can watch those videos and see things -- obvious and subtle -- that I recognize, that the people in the videos don't always even mention, maybe they don't even have a conscious awareness of these things -- that I am excited about when I see the improvement. I don't see how they could fake these things, let alone fake multiple things all at once.

Let's put it this way: Maybe you could fake a disability (as though anyone would want to). But for an after video to be as convincing as these are, you would have had to spend years convincingly faking significant disability. Because I don't see how you could successfully fake this kind of wellness.

So, so exciting.

pklittle wrote:She just posted a new one today!