This Is MS Multiple Sclerosis Knowledge & Support Community

also of interest - high d3 equals low pro-inflammatory TNF-alpha:
http://www.ncbi.nlm.nih.gov/pubmed/18652680
J Inflamm (Lond). 2008 Jul 24;5:10
Serum 25(OH)D status is inversely related to TNF-alpha concentrations in healthy women, which may in part explain this vitamin's role in the prevention and treatment of inflammatory diseases.

I love it when some of this MS-puzzle adds up. We know we are on the right track with D3 so. D3 good. Sambucol bad.

indeed brazil nuts all round! (you can have mine lol)

I've taken plenty of sambucol, both the liquid and tablet form with no ill effect. I'm taking some right now in fact as I think I have the flu!!

that is amazing gibbs, given its powerful inflammatory claims!

my husband is a mycologist, we have recently decided to develop a lab specifically for growing Cordyceps to distribute within the United States. My mother was diagnosed with Progressive MS nearly 6 years ago, and she is eager to begin her trial period with this alternative approach. Based on my understanding (which is rather limited compared to my husband) cordyceps taken in the right amount, appr. a small handful per/day, helps prevent further demyelination and scar tissue formation.... currently New Chapter sells Cordyceps in pill form @ $40 or more per bottle. The problem my husband and I see with New Chapter is:
1) The amount ingested by this method is not enough to have long term, beneficial effects for MS patients
2) the cost to actually receive long term benefits is simply not affordable

My husband personally knows a mycologist in Costa Rica who moved there specifically to grow Cordyceps, though he has not yet begun to distribute them within the US. We plan on working with him as we set up our lab here in the US.
If anyone is interested in more information about our
NON Profit--Lab project Cordyceps, or if you would like to provide impute on whole sale prices that you feel WOULD BE affordable for this treatment, offer testimonials on your experience with Cordyceps IN direct relationship to MS symptoms, to address any questions, or if you would like to to be added to our waiting list as a recipient of distribution -- please email simonfamily_1@yahoo.com

Good morning,

Has anyone has any success with eating a lot of spirulina and chlorella for myelin repair?

Lifestream spirulina helps me a lot. Chlorella gave me low blood sugar and didn't react with me well at all.

Family Elder,

Thx. I do not have MS but my husband does.

My acumpunturist told me to mix spirulina and chlorella 3:1 because spirulina was not mixing well with me. It worked. Am not sure what an acupuncturist would recommend for you, but just thought I'd put it out there.

Have you or anyone else used Crystal manna blue-green algae?

chlorella, spirulina etc have lots of chlorophyll which means lots of magnesium, which is important for myelin. if chlorella doesn't agree with you, you could try boosting your intake of dark leafies like kale, chard, spinach.

Ultrastructure of the optic nerve in magnesium-deficient rats.
http://www.ncbi.nlm.nih.gov/pubmed/12646748

EFFECTS OF CALCIUM AND MAGNESIUM DEFICIENCY ON THIAMINE DISTRIBUTION IN RAT BRAIN AND LIVER
http://www.thisisms.com/ftopic-reply-8070.html

The multifaceted and widespread pathology of magnesium deficiency
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I am new here and for the last 6 months I hav been considerng usig Marijuana for pain. I currentky take Morpheine and have been on some kind of pain med for 5 years. it really messes with my stomach..So I am still considering it and today is one of those day where i would definetly try it..Do any of you use it and what is your exsperience with ..

My one issue is where do I get it !!

..Do any of you use it and what is your exsperience with ..

Use it every day and get relief from pain , spasticity, bathroom urgency and just feeling good. The only draw back is it can make your legs feel weaker than they are already so just find out how it affects you and just be some where you can enjoy the many good things it brings "Morpheine or pot?" give pot a try,

My one issue is where do I get it !!

i don't know your situation but it's not hard

Marijuana helps my wife tremendously with spasticity/pain/sleep/stress/anxiety. I highly recommend at least trying it to see how it works for you.

This may sound a little scary but we were able to find someone on myspace in Colorado when we flew there on vacation about a year and a half ago. I found a profile of someone that looked to me like someone who was nice and a possible pot smoker. I sent them a private message explaining that my wife had MS and that I was looking for someone to help find some marijuana while on vacation to help her sleep. They responded, we traded phone numbers and talked, after which they were more than happy to help. You'd be surprised how many pot smokers there are out there, and how willing most of them are to help.

Cheers,
John

I'll tell you another thing for flying. I used this my last two Stanford trips and you can pack away enough for about a week. Take a brand new Chapstick and screw the contents all the way out. Cut off about 90% of the Chapstick and wash out the empty tube (it will still have the screw in it). Then I pack that thing solid with weed, leave enough room for the plastic carrier with a little chapstick on the end of it, and put the chap stick back in. If they take the lid of your chapstick off, it still looks like chap stick. I pack it real full too so there are no gaps and I don't carry it on me but rather put it in my checked bag. It's worked twice so far and I think it always will!

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