This Is MS Multiple Sclerosis Knowledge & Support Community

pmouse wrote:Hello to everybody

I have to report my improvements I noticed last day 9.5. (treated 4.5. in Bulgoria):
- Before I could not walk fast, yesterday I could for 100 m
- I tried how long I can walk before rest - about 400 m
- I tried to run slow and I could about 25 m and back. I didn’t have to mentally control each leg, running was more on my fingers – before I could not run at all
- After running or having faster heartbeat my vision is not foggy any more, but it still shakes, I can read letters before I couldn’t
- I can jump with both legs
- My balance improved for 50 % (when standing I can be very still)

I am really happy and waiting for other improvements.

forget it. Its all placebo effect

Oh man... this is so encouraging...
Hope more will come. From the moment i saw you i knew you deserve it the best.

Of course, today I am very tired and my legs and back hurts.
I must have been doing too much at once. I have to try doing things with smaller steps.

The good thing is that you saw definite improvements right away man!!! I am so jealous
Keep in touch, i always think of you and all others i met there. I got your picture you know ;) You were on the bed remember? The next one i want to see you running.

Keep it real.

Thank you so much Costumenational, Colpaesce, Pink, Pmouse, Chris and the others for your posts!!! I'll be in sofia the 07.07 so you make me feel better!I wish you all the best!!

sbr487 wrote:

pmouse wrote:Hello to everybody

I have to report my improvements I noticed last day 9.5. (treated 4.5. in Bulgoria):
- Before I could not walk fast, yesterday I could for 100 m
- I tried how long I can walk before rest - about 400 m
- I tried to run slow and I could about 25 m and back. I didn’t have to mentally control each leg, running was more on my fingers – before I could not run at all
- After running or having faster heartbeat my vision is not foggy any more, but it still shakes, I can read letters before I couldn’t
- I can jump with both legs
- My balance improved for 50 % (when standing I can be very still)

I am really happy and waiting for other improvements.

forget it. Its all placebo effect

wow very happy for u all am going next week..am a bit scared but looking foward to:)

RobSandra wrote:Hi
we are new to this site and scheduled for Sofia in July. What can you tell us about the Hospital hotel and the Greenville hospital? We are looking to finalize our trip particulars and appreciate any comments/advice?
thks

hi, i'm wondering about the time period between sending mail to dr grozdinski and receiving a reply.

we're new to this and send him mail a week ago, have yet to hear back.

is his personal email the only means of contact?

hiiiiiiiiiiiiiiiiiiiii,
Just arrived home. Am feeling well this afternoon - it comes and goes. I noticed as i was walking up the street that I could walk and turn my head at the same time! I would lose my balance before if I tried this. Eyesight is good again this afternoon. I've been told my voice is stronger as well. Not feeling too tired after the journey either. Think that's it for now.
I received my epicrisis in Bulgarian (will get in in English in a few days): Azygos was 70% blocked. Right jug is listed as critical - I remember Dr Petrov saying there was practically no flow at all. Left jug 70-80% blocked in 3 places. This all still surprises me!

Niceflow - It was Petrov who chose not to stent as the ballooning did the trick. After the doppler I was told that I'd need one in the right but thankfully I didn't.
Costume, my lovely friend, how are you doing? I remembered today the accident with my adapter plug do you remember?

HI again

Great to hear your improvements colapecse and thanks costumenastional.
I am sure that you will soon notice some difference in you symptomes.

Dr. Petrov was realy great. I left him to decide aboul balooning or stenting. He was 3 times in ous capital city Ljubljana so we talked a lot between cuting my skin.
Also Prof. Grozdinski did another Dopller just to save a picture to my USB.

By mail I got answers from prof Grozdnski at first in one week (january) then later when I had fixed date he answerd me in 24 hours.

The clinic is one of the best in eastern part of Europe so dont be worried. They know what they are doing.

Colapesce, of course i remember honey
I am so glad you are doing better girl... i really hope the best for us all. Keep in touch please, i have a good feeling for you ;) After all, you were totally blocked!
Pmouse keep us in the loop friend. I wish every new day will be better for you.

For me it s weird. I am trying to check on myself all the time and i get dissapointed so i decided to keep on living as i can. I have been noticing very subtle changes but i aint gonna say anything cause i am just not sure about anything.

It's funny, I never heard of BP problems until I suffered from it. I guess I won't be the only one. It's not a fun thing to experience that's for sure. For all that we have suffered through prior to the procedure the BP problems are not a huge deal.
Cola, I hope you are feeling better! It took me almost 5 days to shake it.

I would love so much to visit Tokuda hospital and the staff again someday.....never say never: )

Chris1967 wrote:

the cost was €5000 euro.
I think it's fair to mention that while you're there. They will tell you that there is an option of paying 750 more for the doctors.

Who were you dealing with???

First time I hear about that.

Thanks Chris

Thank you all for your posts! Encouraged as we will be in Sofia next week - hoping for positive results!

carambole wrote:

Chris1967 wrote:

the cost was €5000 euro.
I think it's fair to mention that while you're there. They will tell you that there is an option of paying 750 more for the doctors.

Who were you dealing with???

First time I hear about that.

Thanks Chris

hey chris
tks for sharing,am going next week can u please tell me for what are the 750e and tks gd day wish a nice day

sisterofms wrote:Thank you all for your posts! Encouraged as we will be in Sofia next week - hoping for positive results!

Hello
am going next week as well gd luck