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Posted: Mon Apr 05, 2010 4:01 am
by sunlounger
Hi Anna,
thanks I'm looking forward to it.
hopefully 3rd time lucky
can you tell us more about the rehabilitation hospital ?
i am trying to find somewhere like this in U.K.
do you notice if the tysabri is helping ?
good luck on the 22nd
best wishes
Posted: Mon Apr 05, 2010 7:51 am
by Pepe
Hi Anna,
Thank you for your update!
We are very happy for your improvements!
All the best to you next April 22th!
Take care and please keep us informed!
Maria is doing well. We will travel to Katowice in summer to do the ordinary control.
A big huge from Maria and Pepe.
Posted: Thu Apr 08, 2010 6:37 am
by annbbe
Hi everybody!
I had my 14 Tysabri inf. yesterday. I am not sure if I still need it, but my doctor said I should stay on Tysabri at least for 2 years - so: 10 infusions to take.
I feel better. I don't have this dropping foot anymore. My balance is better but still not ideal. My left hand is a bit stronger, but still is weak. If I am not tired and stressed I walk NORMALLY. I still can't run (or maybe I am afraid of running), but things are going in a good direction:).
My rehab hospital it is normal polish hospital. I got a referral and I spent 3 weeks exercising. It was good time for me, but my doctor didn't see any change in EDSS. I came with 3,5, I finished my stay with 3,5.
Posted: Fri Apr 09, 2010 7:41 am
by Pepe
Posted: Fri Apr 23, 2010 8:08 am
by annbbe
Hi everybody!
I was in Katowice today morning- I visited Euromedic to check my left neck vein 3 month after procedure. Everything is ok- the vein is still wide enough:).
Next checktime in three months.
Posted: Mon Apr 26, 2010 1:20 am
by Pepe
annbbe wrote: Everything is ok- the vein is still wide enough:)
Hi Anna,
Great!
Are you improving? Do you feel better?
All the best,
Pepe.
Posted: Mon Apr 26, 2010 1:46 pm
by sunlounger
Hi Anna,
thats great news
please keep us posted
Posted: Mon Apr 26, 2010 1:57 pm
by Johnson
annbbe wrote:Hi everybody!
I was in Katowice today morning- I visited Euromedic to check my left neck vein 3 month after procedure. Everything is ok- the vein is still wide enough:).
Next checktime in three months.
:)
I thought that I was going crazy when I saw your "second day after procedure" because I thought you had it months ago. I'm glad your check up was positive!
7mnths after liberation!
Posted: Wed Aug 25, 2010 11:03 am
by annbbe
Hi Guys!
Almost 7 months after procedure! My balance is much better. If I have to, I am able go go up/downstairs without handrail or wall for help. Or even with something in both hands. My left arm/hand is much stronger. I am able to keep going with a plate of pizza in the left hand. However, I am still afraid of carrying a cup full of drink in it. My left leg is stronger as well. I feel like if everything went sloooowly better and better:). Just not my english, sorry;)
Posted: Wed Aug 25, 2010 4:58 pm
by msgator
thanks for the update. Keep healing.
Ann
veins
Posted: Wed Aug 25, 2010 8:45 pm
by blossom
so glad to hear of continued improvements.
Posted: Fri Aug 27, 2010 3:51 am
by Pepe
Hi Anna,
Thank you very much for your update!!!
Great!!! Congratulation!!!
We have been in Katowice on July and everything was OK. María is doing well too.
All the best to you!!!
Pepe.
Posted: Sat Sep 04, 2010 2:04 am
by annbbe
Hi!
Yesterday I tried to run and...I did it! I haven't run for ages! I wasn't able to do so.
It wasn't beutiful run, but I was able to move my legs normally.
Posted: Sat Sep 04, 2010 3:07 am
by sunlounger
Hi anna,
it's great to hear your doing so well,
really impressive your able to run again
hoping your continue to improve,
thanks for the update,
best wishes,
sunlounger
Posted: Sat Sep 04, 2010 10:35 am
by garyak
annbbe, so inspiring and thanks for the periodic updates. Best of luck, gary