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Cheers mate!

I saw dr Smith today, very nice guy...

In short;
Csf flow is ok
Hypermobility at cranio cervical junction
Narrowed cord is the cause of my problems, he does not believe it's ms
But no solution for cord problem

Report will follow...

I look forward to seeing the report.

Hello Robert,

I have read through your report several times and examined the images that were included. They images are fantastic. The details are terrific. The report is also excellent and Dr. Smiths explanations in plain English were helpful. It will be interesting to see the full set of scans. In the meantime, you case continues to be a most interesting and unsolved mystery. You have significant atrophy of the cord with no apparent signs as to what may have caused it. In this regard, there are only a few things that can cause such significant atrophy of the cord. Ischemia is one of the major causes but you do not have any obvious signs of compression or malformation of the vertebral-basilar artery, and you do not have degeneration of the spine significant enough to cause compression of blood supply to the cord. Increased venous resistance can also lead to ischemia and degeneration of the cord also but you do not have any obvious signs of compression of venous pathways. Lastly, increased pulsatility can cause degeneration of nerves but you do not have any obvious signs of obstruction to blood or CSF flow that could cause increased pulsatility.

I do have some thoughts on the matter but I have to "stew on it" for awhile before I comment further.

Hi doc,

Thx and indeed....what a puzzle
Can't wait to send you the cd, do you also want the 2013 upright and the 2013 horizontal full spine Mri?

Rgds,

Robert

Robert,

Send them all. I suspect that the anterior spinal artery may be affected and causing the atrophy in your case but it is not clear how it is being affected.

Ok..will be done!

Hi doc,


CDs are delivered to post office, think they will be delivered at Friday.
I will track the package...

Haven't been following this as my link seems to have dropped, anyway,
Good conversation after the 'one drop of blood' article;

Hi Doc,

Do you by any chance know if dr Harshfield has seen my upright MRI report?

rgds,

robert

Hello Robert,

I will look for the CD on Friday. I have been very busy lately with my new business venture as well as the two important papers I told you about and my next book, which I need to have ready for the publisher this coming March. Needless to say, I am up to my eyeballs in work. It would be easier and faster for you to make arrangements directly through Dr. Smiths office to get a second opinion and report from Dr. Harshfield rather than going through me. Don't do anything yet, but I may also recommend that you contact Dr. Rafael as well. I cite Dr. Rafael in the paper I sent you regarding the role of the vertebral-basilar artery and the anterior ventral and anterior spinal arteries in neurodegenerative conditions. I suspect there may a connection between the vertebral-basilar arteries and the atrophy of the cord in your case.

Hello Nigel,

How are things on the bottom side? My link still works but it doesn't work correctly. Instead of taking me to the most recent comment and latest page it takes me way back to page 288.

Hi Doc, well I'm still slipping down the cascade slow, slowly but measurably.
I stopped the CPn protocol about 3 months ago and had gut issues so had a think and had tests for coeliac and yup a new dx for my list.
So I have completely dropped gluten and its been almost 6 weeks and have had a second blood serum test for coeliac a couple of days ago to see if there is any change in numbers, I don't want a biopsy done.
Spring is springing and my gardens are thriving and so are the 'blessed' weeds!
I'll have a read up on what I have missed soon, been looking at all sorts of other things as they come up on fb which fills my time to overload.
Hope the reno and then the bed filling is going well!

Paper of dr Hernando Rafael

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4162586/

Just read the paper and it brings me to a question that I have been trying to get my head around since the coeliac dx I am wondering why there is progression in many of these de-generative dx's if they are mostly vascular origin?

Is it that the issue is increasing and in examples like CCSVI is there an increasing flow problem over time?

Seems that sometimes the damage increases due to issues independent of the actual primary cause, like a cascade after the fact.

Lots of info from David Perlmutter on the issues caused by gluten and other grains that open the BBB and allow not only gliadin/zonulin components but other negative proteins etc across the BBB. So one thing opens the BBB but others cross and do even more damage within the CNS.

The other finding of plasma doing harm is another insight to progression imo.