Posted: Fri Jun 27, 2008 5:52 am
Ah!av8rgirl wrote:... Well Bob, I live in Idaho and I own a revolver and not a parachute. What do you think! LOL! But I do play fair. I ask questions first!



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Ah!av8rgirl wrote:... Well Bob, I live in Idaho and I own a revolver and not a parachute. What do you think! LOL! But I do play fair. I ask questions first!
That's what "cyber" flame throwers are for, Bob--nothing more than egg-on-face if you pull the trigger and the truth turns out to be... problematic.Lyon wrote:... A girl after my own heart......other than the "weakness" shown by asking questions firstBob
I'd do the waiting game, Bob. Anything can slam those mrtc's, you know. And if your area has been as full of people with viral infections, spring allergies, and the usual slam of post-school strep throat, you may be looking at the "usual suspects" of maskers for mrtc's.Lyon wrote:... but the next day she got a call that Opexa hadn't been able to isolate mrtc's (I got the info second hand, so take it with a grain of salt) and that my wife had the option of any other treatment option of her choice OR being checked periodically to see if mrtc's can be detected at some point in the future... Bob
I think that is THE reason for hope and I'd encourage y'all to stick with it too for all the reasons already laid out.Lyon wrote: At any rate, in the absence of being told anything good with certainty, she hasn't experienced any bad, which can be seen as reason for hope.
The option of any other treatment would mean dropping out of the extension study. Anyone at any time has the option to drop out of the study and use another treatment. I think having Opexa check your wife’s blood for MRTCs every 3 months is the best thing to do and is consistent with how the results of Tovaxin may evolve for those lucky enough to only need to be monitored.On the day of the appointment we were told that my wife was still producing mrtc's and they would make an appointment for the blood procurement, but the next day she got a call that Opexa hadn't been able to isolate mrtc's (I got the info second hand, so take it with a grain of salt) and that my wife had the option of any other treatment option of her choice OR being checked periodically to see if mrtc's can be detected at some point in the future.
If your wife has not changed what she is taking, and she is avoiding the list of drugs that Lars posted http://www.thisisms.com/ftopic-3826-0.html (It is about midway down the first page), then any masking she was experiencing would be the same now as when she started the study. It seems that you would need to be taking a significant amount of something on the list before you would down regulate the immune system enough to not be producing a detectable amount.Despite my realizing that an absence of myelin reactive t cells might be considered a good thing, being told that they can't make the vaccine for her was kind of a scary and uncertain situation.......uncertain whether or not "no" mrtc's really meant NO mrtc's were circulating in her system or if it really only meant that mrtc's were there but weren't detectible due to masking.
Your doctor seems to be well informed. The following is from a previous post.He said that they figure only a tiny few of them are actually doing the bad stuff, and if they can nuke those, then it's pretty much gone.
Marcia,ssmme wrote:I have a question...For those of you that are in the club - how long did it take for your vaccine to be created? Mike Tucker and I had our procurement on the same day within 30 minutes of each other. He will be dosed around the 15th of July. I won't be dosed till around mid August.
I hear ya, kiddo. Last time around, I was about 13-14 weeks from "Draculette Draining" to shots with the escalating b/p to prove it!ssmme wrote:I have a question...For those of you that are in the club - how long did it take for your vaccine to be created? Mike Tucker and I had our procurement on the same day within 30 minutes of each other. He will be dosed around the 15th of July. I won't be dosed till around mid August. I hate that I must go thru the whole summer before the first dose. Summer heat during July and August can be awful in KY. I hate the wait. I want my Tovaxin!
Marcia
Jane,I haven't heard a word about my date... should I live up to my screen name, be a pest and call 'em?