This Is MS Multiple Sclerosis Knowledge & Support Community

Well I've got tinnitus!

Katie45-that's why I think you can prevent MS from happening in the first place, keep the iron down. I was reading a book called Still Alice, a fictional book that has been endorsed by the Alzheimer's Society. She develops early-onset Alzheimer's (at menopause!), and I could not enjoy it, because I kept thinking, just do some phlebotomies!

You asked me who was going to do the needles, which triggered my sense of humor... and I was going to answer, "well there is this kid that does the lawn". LOL

lol too funny!~ where are the junkies when we need them...I wasn't knocking drug addicts, sometimes I am quite serious that in this instance they would be trustworthy to expect accurate aim for a vein. I'm about ready to come check out the 'lawn boy' ! I personally know for me bloodletting is the answer...nothing new as it's been known as a cure for hundred's of years...I find it interesting how 'modern science' set us against it by convincing the people of it's barbarism! Amazing how brainwashing works!

Katie45-I was doing some surfing yesterday, I came across a blog that was quoting some of our writings from here and one of the women said she was going to into her doctor's office and ask for a phlebotomy. No mention of doing an iron metabolism test first. And that concerns me, that people will not test properly first for iron overload. I really don't want to see anyone getting harmed by this therapy by not understanding they have to test their iron metabolism before proceeding.

But it surprised me to find out that it is already seeping into the world... the whole idea that MS might be related to hemochromatosis in some cases and treatable in a very easy manner. However, I have to prove myself that I can continue to improve. The only thing that I have noticed from to phlebotomies is a transient shortness of breath a few days after doing one, I assume due to lowered hemoglobin. It is not severe or anything, but it is there sometimes. Air hunger I think they call it. But such a small price to pay for reversing symptoms.

I don't know whether you were on Goodshape Histamine Board in the beginning... I was. When Goodshape first started that board, I was sometimes the only poster, and I could not believe the nasty nasty people that would attack me. When we started promoting LDN (I mean we as the core group, because I really didn't tolerate the stuff), we took so much flak. Really abusive posts by anonymous posters... I think when I started to do this, explore this idea, I was afraid of the same response. Maybe I have sometimes been a bit defensive, but it is a history of having to defend my views. I am hoping that phlebotomy just slowly becomes accepted as a valid treatment when people clearly show iron metabolism/overload issues.

Trent-my husband has this tinnitus... it drives him crazy because he loves music and it interferes with the sound of course. My environmental illness Dr. says she sees good results with people putting drops of liquid zeolite into the ear canal, which absorbs heavy metals... my husband is not adventurous and has never tried this but I don't understand. Why not try it, but some people are not meant to be guinea pigs.

M, The airhunger statement caught my eye...sister (before liver transplant) and I both have this..(maybe iron-loading anemia)? I wonder if smaller phlebs are in order to avoid this..mine was bad until I took iodine for thyroid etc. Maybe it's the iron coming out of the tissues/organs after the phleb..I think our bodies are desperate to unload this poison and when we give them room they dump it into the bloodstream? Iron chokes off the oxygen in RBCs.?

Katie45-your brother has cirrhosis, your sister has had a liver transplant and they still won't testing for HH? Can you contact one of the public representatives for the College Of Physicians and Surgeons? I would raise hell, although I know much energy that takes.

Saw an episode of HOUSE last night on TV he was saying to a patient this self diagnosis from the net is BS etc. etc......Wonder who got paid to write that script...Funnny ND's say 'thank God for the internet while mainstream medicine denounces it at every opportunity..wonder what they're scared of....


yes, whole family is dying of this while drs. want to send u for this test that test, everything but the real problem! Next one is the cardiologist for me on wed. if I'm not dead yet...

M, did u ever have very low bp? orthostatic hypotension they told me in hosp.

I've had tinnitis for years too Trent...pain in the butt..if I'm lucky sometimes I can shift head position just right/ or cough/ etc. not much works..maybe try the zeolite .

Katie45-my blood pressure used to be about 90/60 on a good day. When I finally started taking T3 thyroid in an amount that got rid of all a bunch of symptoms like hypoglycemia, no muscle strength etc., my blood pressure have to about 110/70... when they did that phlebotomy, this last one, it was 127/75, up to 132/75 I believe afterward... more than it's ever been, I don't know why.

Trent,
I've read some doctors (noted on some health websites)
highly recommend one of the Wobezyme products (Germany) with
great results. Is it iron inflammation?

There is no hope of getting t3 tested properly in this province...I'd bet on it..I have a thyroid full of iron and that's way over their heads, Can imagine the fight!This is what healthcare has become ' run them around til they're dead" this is our cost effective healthcare plan...and keep them believing we really care about them but we're stupid/ignorant of everything because the available info is not credible/what we learned in med school....

M, contacted the college of p and surgeons about this before......posted that they emailed that it was the responsibility of ministry of health...contacted the m. of health, they directed me to the college of p and surgeons......round and round we go...

their response...From: "Inquiries" <Inquiries@CPSBC.CA>
To: <katson45@shaw.ca>
Subject: RE: [Inquiry]hemochromatosis
Date: Wednesday, February 24, 2010 4:12 PM

Dear K. Hutchinson:

The College of Physicians & Surgeons of British Columbia acknowledges
receipt of the copy of your email sent to the President of the Canadian
Medical Association and the Ministry of Health.

I would clarify that the College of Physicians & Surgeons of BC does not
set the curriculum for the medical schools and training facilities.

Sincerely,

Brenda Kay
Inquiries Advisor
Complaints Department
College of Physicians & Surgeons of BC
#400 - 858 Beatty Street
Vancouver, B.C. Canada V6B 1C1
Ph: 604-733-7758
Fx: 604-733-3503
Toll Free: 1-800-461-3008
Website: www.cpsbc.ca

IMPORTANT NOTE:
The College is located in an Olympic "red zone," in close proximity to
Olympic venues, restricted areas and pedestrian-only corridors. As a
result, operating hours throughout the Olympics have been adjusted.
* From February 8 to February 28, the College hours are 7 a.m. to 3 p.m.
* The College is closed all day on Friday, February 12, 2010.

The content of this email communication, including any attachments, is
considered confidential, privileged or otherwise exempt from disclosure.
It is intended only for the person(s) to whom it is addressed, and
further distribution is strictly prohibited without the consent of the
original sender. If you have received this message in error, please
immediately notify the sender by telephone at 604-733-7758 or by return
email, and delete this communication. Thank you.

-----Original Message-----
From: info@cpsbc.ca [mailto:info@cpsbc.ca]
Sent: Wednesday, February 24, 2010 2:27 PM
To: Inquiries
Subject: [Inquiry]hemochromatosis

Inquirer: k. hutchinson
Inquirer Email: katson45@shaw.ca

Message:

------------------------------------------------------------------------
--------

my letter to president of Canadian Medical Ass./minitry of health...This
hereditary blood disorder is being drastically misdiagnosed in this
country. People are suffering horrendously under the miriad of labels
being assigned by the untrained and ignorant medical community.
ms,parkinson's, chronic fatigue,ALS, alzheimers,arthritis etc..to name a
few 'labels' This is a result of the inadequate education offered in our
medical schools which seem to be more focussed on pharmaceutical sales
rather than healing the human body. We won't be voting for this 'death
march' We need to start training doctors to heal people! k. hutchinson

Has anyone on here tried NCD Liquid Zeolite? Effects? I've never heard of it. It seems to be a cure-all for everything from kidney stones to pancreatic cancer, and much more besides. Or is it fool's gold?