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Dr. G
Posted: Sun May 30, 2010 1:44 pm
by Trooper
Hi Gang:
Rec'd a reply from Dr. G & his new e-mail address at lunch (PST)
You have been included in our February / March 2011 waiting list for diagnostics and treatment in Tokuda Hospital Sofia’s CCSVI Center. We will contact you with available medical service dates and further details about the medical service examinations and the treatment process, logistics, pricing, payment and other details within XXXX days. If it is possible to include you at an earlier date you we will contact you immediately.
Wonder what the weather will be like then
T
hospitalization
Posted: Sun May 30, 2010 5:48 pm
by AnnaP
Hi everyone,
Just wondering about post Liberation, will I (husband too) be in hospital the whole time(about 4 days?) I reserved the Greenville from June 6-13, should I cancel and reserve for a few days only? (Liberation June 7

)
Please help?
Thanks
Posted: Mon May 31, 2010 4:28 am
by sofia
yes, costu, i know exactly what you mean. on bad days thinking that something has gone bad with the operation, i have restenosed, thinking that maybe the negative wing is right, that it is to far fetched. as i still have the bad days i know what you mean.
it can't fix all ready done damage, i think that is to much to hope for. i have after all been ill for more then 8 years now.
but i agree with you, main blood drainage from brain needs to be kept open. dizzyness that was my latest attack has cleared relativley well, and the urgency i was starting to feel a month or two before operation has gone. and fatigue is better, so i am very pleased. my optic nerve is giving me loads of bother today, almost starting to think it is a new attack, bu its same spot on the same eye, and there is no pains with it, so i think its just the old damage acting up again.
need to get confidence back after operation, we need to get used to it beeing stabile, and then we can go back to trusting our own health a bit.
my gp is giving me all sorts of follow ups i he possibly can, blood tests and values, so i am very pleased with that. getting me followuptreatment from vascular centers are probably not going to happen, but that is not up to him, unfortunately.
watched that uk web-cast yesterday, there wasn't much enthusiasm to find, just very very careful, and reluctant in whatever hope they would give us. its just so arrogant calling all our experiences anecdotal evidence. even if i was very happy with the treatment in bulgaria, i would prefer to get treated locally, and followed up every month with scans and such. if we are feeling worse or not improving it might be down to full or partial restenosis. even if we can't complain to much about the cost in bulgaria, but going back on a monthly basis i wouldn't be able to afford. nor would they have the capasity to see us all that often either.
no the risks of not treating us is far worse then giving us the oportunety to find out if this works or not. like they do in kuwait. i just don't get it.
big rant from me

Posted: Mon May 31, 2010 6:23 am
by burg
Anna..see you on the 7th..I believe we're discharged 2 to 3 days after procedure. Why pay for hospital when you're in hospital? Anybody else scheduled next week??
Sofia& Costume..feel better soon!!
Pink...great blog...you give all hope!!
Posted: Mon May 31, 2010 8:41 am
by devine
Arrived today in Bulgaria.... ! Tomorrow have an appointment at 9h30 where I`ll be seeing the doctor... Don`t know what happens from there but will keep you posted with any findings.... : )
Posted: Mon May 31, 2010 8:44 am
by ales
That's great Devine. I'm scheduled for July 21st so I am very eager to hear how things go for you. Fingers and toes crossed for you. Good luck.
Posted: Mon May 31, 2010 8:51 am
by Villagemaid
Thank you for all of your updates!!
I am scheduled for September 8th.......I hope that's not too far ahead to book flights.....
Posted: Mon May 31, 2010 9:04 am
by Taps
devine wrote:Arrived today in Bulgaria.... ! Tomorrow have an appointment at 9h30 where I`ll be seeing the doctor... Don`t know what happens from there but will keep you posted with any findings.... : )
Best of luck Devine and hope all goes well!! Please do keep us posted if you can....
Posted: Mon May 31, 2010 9:08 am
by devine
ales wrote:That's great Devine. I'm scheduled for July 21st so I am very eager to hear how things go for you. Fingers and toes crossed for you. Good luck.
THANK YOU! Should be interesting since I was confirmed back in March at the Westmount Square that I had no blockage... (in which I`m not convinced...!)
Posted: Mon May 31, 2010 9:16 am
by devine
Best of luck Devine and hope all goes well!! Please do keep us posted if you can....[/quote]
Thank you, will do for sure... I promise.. as long as the internet works here... as its the most slowest and weakest connection you can get.... : )
Counting the hours
Posted: Mon May 31, 2010 9:42 am
by mduffy
I leave tomorrow night for admission on June 3rd. I keep feeling like I have missed something but excited beyond belief. My first symptom was temporary blindness at 18 years of age and I am now 43. How annoying will it be to think that 25 years of misery could have been avoided with day surgery? Looking forward to the next 25 years MS free........ how great would that be?
Posted: Mon May 31, 2010 10:51 am
by ven
Taps wrote:devine wrote:Arrived today in Bulgaria.... ! Tomorrow have an appointment at 9h30 where I`ll be seeing the doctor... Don`t know what happens from there but will keep you posted with any findings.... : )
Best of luck Devine and hope all goes well!! Please do keep us posted if you can....
wish u best of luck:)
Bulgaria Travel
Posted: Mon May 31, 2010 11:05 am
by Trooper
Villagemaid wrote:Thank you for all of your updates!!
I am scheduled for September 8th.......I hope that's not too far ahead to book flights.....
Villagemaid:
When you decide to book, be sure to buy good Travel Insurance, never know if the Iceland Volcano might get upset again.
What ever it's name is.
T
Posted: Mon May 31, 2010 12:15 pm
by ales
Same good luck to you mduffy. I've had it now for 18 years and it sucks!!! Can't wait til July 21st but until then I'll live vicariously through you and all the others who will walk on terra firma before I. Thinking of you and the success you deserve.
Posted: Mon May 31, 2010 12:21 pm
by colapesce
good luck devine and mcduffy!