This Is MS Multiple Sclerosis Knowledge & Support Community

Kerri, can you check your pm's please? Jennifer

Downunder wrote:Kerri, can you check your pm's please? Jennifer

Hi Jennifer - is you inbox full - tried sending a PM but it hasn't left my outbox yet.

I will send it again on FB.

to all walkers, wheelers, etc,

have a great day, and spread the CCSVI message far and wide!

cheers, nico

The CCSVI feature on the Sunday Night program on Channel 7 originally scheduled for 6 June has been postponed 1 or 2 weeks.

What an awesome day we had yesterday at the MS Walk.
It was fantastic to meet my fellow 'Liberatos' and on-line buddies!!

I remained in the info tent, whilst others handed out our excellent leaflets. The blue balloons were the best idea as they stood out in the sea of red!!

Well done to Kerri and Leanne in Melbourne and Louise in Sydney.

I just got the OK from Bill Younger (CEO MS Soc Vic/NSW/ACT) to put our CCSVI pamphlets up at the Nerve Centre in Blackburn Vic.

Perhaps someone can take a bunch of them to the MS Soc in NSW too?

Thanks for your support Bill.

Jennifer

A post from Facebook:

Okay QUEENSLANDERS - you asked for it! Dr Ross Sharpe of Sharpe Cardiology & Endovascular based in Southport will do your testing and liberations. Ph 1300 912 345

Does anyone know of places in Perth to contact?

Holy Moly "The wall came down" in Australia still unbelievable but true.
Best Arne http://www.csvi-ms.net/en

--------------------------------------------------------------------------

Australian Locations: http://www.ncahs.nsw.gov.au/support/ind ... siteid=189

CCSVI Ultrasound Doppler Diagnosis

Treatment by balloon venoplasty - If the diagnostic process indicates a CCSVI situation patients can undergo balloon venoplasty at the following locations:

Brisbane Dr Ross Sharpe (1300 912 345) from Sharpe Cardiology & Endovascular, based at Southport, QLD Dr Ross Sharpe (1300 912 345) from Sharpe Cardiology & Endovascular, based at Southport, QLD
Northern Rivers - Ballina Dr Ross Sharpe (1300 912 345) from Sharpe Cardiology & Endovascular, at his Ballina consulting rooms. Dr Ross Sharpe (1300 912 345) from Sharpe Cardiology & Endovascular, based at Southport, QLD

Newcastle Dr Paul Thibault (02 4961 0688), a founding Fellow of the Australasian College of Phlebology, offers scans at his clinic at Newcastle.

Professor Lourens Bester (02 8382 2327), St. Vincent's Hospital, Sydney
Sydney Castlereagh Imaging (02 9326 2799) at Edgecliff Professor Lourens Bester (02 8382 2327), St. Vincent's Hospital, Sydney

Melbourne Dr Julie Greg (sonograofpher) from the Melbourne Radiology Clinic (03 9667 1667) . Professor Ken Thomson (03 9076 2536) at the Alfred Hospital

Perth Doctor Sanjay Nadkarni (08 9381 6292) Doctor Sanjay Nadkarni (08 9381 6292)

so, did they air the show, because I followed the link and found no references to one.....

Thank you muse, I have noted that down.

My own neuro is fairly conservative and is not really even interested in hearing me talk about this stuff. I will try again on my next visit in a couple of months and if I still have no joy, I will be moving forwards with this.

Nothing new in the details, but interesting to know it got a mention in http://www.mssociety.org.au/documents/i ... nter10.pdf

This may help reach people who have not been following CCSVI on the net.

A blog entry by someone treated in Sydney for CCSVI: http://community.ozms.org/content/ccsvi ... experience

I believe the coverage of CCSVI in the Sunday Night program (channel 7, 6.30pm), has been rescheduled to Sunday 20th June. Thus no promotional info on this on tv or internet yet.

muse wrote: Professor Ken Thomson (03 9076 256) at the Alfred Hospital

Please note Prof T's phone number is:
03 9076 2536

The '3' is missing from the quote.
Arne can you edit please.