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Well I am going to try metabolic enzymes... have been hesitant because I do not react well at all to digestive enzymes, they make my guts hurt! Hurt so bad that I thought I would have to go to the hospital, each time I've tried and I have tried many different brands. But metabolic enzymes may be different, I won't know until I try them... removing blood would remove fibrin (and 100,000 other compounds!) I did not order from these people, I always order from iherb.com because they use the Postal Service and it is a flat four dollars to Canada. I'm going to ask my Dr. on the 27th to test ferritin to see whether I can do another phlebotomy and also to test fibrin levels. The rabbit hole seems to be going right down the center of the earth LOL
Research is validating the clinically-seen effect that enzymes keep stents open longer and improve both clogged arterial and micro-circulation. Many diabetics have avoided limb amputation when clots and plaque were removed and full circulation was restored in as little as 48 hours by several enzymes including serrapeptase, also called serratia peptidase, which has been shown to induce intense clot busting, anti-inflammatory and anti-edemic activity. As inflammation increases fibrinogen levels and increased fibrinogen increases clotting risk, the powerful anti-inflammatory activity of serrapeptase nicely complements the excellent clot busting activity of nattokinase. See some serrapeptase research here.
Posted: Wed Aug 18, 2010 4:40 am
by shye
Merlyn
doesn't seem like you have given the cayenne a long enough time to see if it helps or not--that is cheaper, and probably safer, than hugh amts of enzymes.
has your dr checked your inflammation level--C-reactive protein and SED rate?
Posted: Wed Aug 18, 2010 11:16 am
by Merlyn
Shye-I don't know that I can handle huge amounts of cayenne. It seems to burn my tongue and lips, and I don't think it's going to decrease with time. I am up to four drops, and my lips burn all day. And it does seem to exacerbate hot flashes, during menopause they warn you to avoid spicy foods, and I must admit curries etc. do affect me now where they did not used to...
I know there was someone on here that said they had the worst exacerbation when they tried Nattokinase.
I think when you start dissolving fibrin and releasing whatever it is protecting should it be a virus or a bacteria, or a spirochete and the fact that fibrin is composed of metals and minerals, you would get some form of stress on the liver. When I do this Nattokinase or serrapeptase, I will be taking EDTA and zeolite and charcoal to try to absorb any toxins that are released. I have learned my lesson, because I had a terrible reaction to medicinal tannins for the same reason. My system got overwhelmed by die off toxins.
In the following article, Dr. Peta Cohen uses a combination of Enzymes (nattokinase and lumbrokinase); EDTA; antimicrobials (i.e. grapefruit seed extract, or GSE; echinacea, goldenseal, gentian, tea tree oil, oregano oil, neem); binders (citrus pectin, aluminum free sodium bicarbonate); and buffering agents (i.e. Vitamin C) to successfully treat autism. He believes this therapy can be used successfully to treat lyme disease, lupus and multiple sclerosis.
Posted: Wed Aug 18, 2010 4:06 pm
by shye
what about taking cayenne capsules? you swallow with liquid, and make sure you have some food in your stomach, so no problem with burning--I am still using it, 1 am, 1 pm, will let you know if notice results at end of the bottle (of 100 capsules).
the fact that fibrin is composed of metals and minerals
--fibrin is a protein
It seems hasty to start disolving fibrin before you even know your level, or your levels of inflammation.
Posted: Fri Aug 20, 2010 12:06 pm
by Merlyn
Shye-is the only way I can find out usually if something helps is to just do it... I always order from this company, and while I realize there are paid shills to post glowing testimonials on any given product, there are too many reviews for them all to be in that category. There are almost 300 testimonials, and most of them seem to revolve around increased circulation/microcirculation/tumors etc.
I never realized so many people have purple feet...
Posted: Thu Aug 26, 2010 12:10 pm
by Merlyn
Finally a neurologist saying that the whole field of neurology has missed the boat on MS. I also liked his comment that people on the Internet are so far ahead of the medical profession with things like vitamin D.
I mean we all know and have known for many years that none of the crap drugs work anyway. All of that money for them, no better than placebo according to their own standards.
On Saturday I am going to start nebulizing a mixture of ACS nano silver, ACZ zeolite and glutathione to see what happens. Dr. Hubbards musings that there is a toxin in the brain of people with MS also complicating the CCSVI makes me more willing to nebulize this stew. Dr. Lyn says you can put drops of this silver in the ears and in the eyes to get direct access to the brain, and that nebulizing it does the same thing. She also said Silver heals the CNS. At any rate, it is a rather unique treatment and she says she is seeing people having very good results doing this for all kinds of conditions, so I'll give it ago as I already have all of the ingredients.
Posted: Fri Aug 27, 2010 11:11 am
by Merlyn
I have an appointment with my doctor this afternoon, and am going to ask to test ferritin to see whether I can do a phlebotomy as I have not done any bloodletting since June. Hoping that in two months my ferritin has gone up to at least 45. I have no idea whether it did or not, so I will test because I really need another one, my spasticity has been gradually increasing to the point of major discomfort. A full phlebotomy would sure be nice!
I'm also going to ask him to test fibrin because years ago my fibrin was fairly high... reference range was 20-450 and my fibrin was 432, anything over 200 is probably not good because it indicates major inflammation going on.
I have not tried the Nattokinase yet, I want to test fibrin first...
Posted: Sun Aug 29, 2010 6:26 am
by shye
Merlyn-
Don't think he will tests the fibrin, need to be exhibiting specific criteria for that usually--if he won't, ask for tests that discern inflammation--Sed rate and C-reactive protein
i should get results back this week on where my Iron panel levels are--tried several times to donate blood a second time, but either blood pressure too high, or hemoglobin too low !! so could not donatel
Think we have the explanation for the low hemoglobin (if correct, i'll post it when find out for sure)--which should be corrected now, so if these iron levels show okay to donate, I'll try once again--would like to, because definitely had more energy afterwards.
Posted: Sun Aug 29, 2010 12:57 pm
by Merlyn
Shye-GP would not testify fibrin because he said it ping-pongs all over the place and I did not pursue C-reactive protein or anything. He was an hour late getting to me because he had a couple of emergencies, and I needed to get out of there. He will test ferritin, and even said that he would do a demi-phlebotomy if my ferritin was not high enough for a full phlebotomy. He also made a snarky comment that it was probably placebo, that my good response is otherwise inexplicable! I kept my mouth shut! Unusual for me LOL
Once again the phlebotomist made a comment about how small my veins are. My brother was visiting over the summer and he was wearing support stockings for venous insufficiency in his legs and he said that my dad(deceased 1999) used to have to wear them too, something I don't remember. So maybe there is a hereditary factor to small veins like Dr. Hubbard is saying. Dr. Lyn says that plaques build up due to an irritant to the endothelial cell walls, which then starts an inflammatory cascade. I assume small veins would clog up faster... I wonder if this is why some people with MS seem to do really really well on raw food diets as it is very anti-inflammatory... I don't have the discipline to eat that way methinks.
The initial trigger for the development of hardening of the arteries is probably damage to the endothelial cell layer lining the artery. This damage may be caused by smoking, viruses, chemicals and drugs. There may be many chemical causes of damage to the endothelial cells in our environment that have not been identified. In the earliest stages, yellow fatty streaks develop in the blood vessels caused by the deposition of fats in the wall of the artery. They are yellow due to the deposited cholesterol. Fatty streaks will not cause any symptoms, but are the earliest sign of arterial disease and can progress to the development of atherosclerotic plaques. Plaques are basically thickening of the innermost layer of the arterial wall. As the plaques become larger they impede blood flow through the artery.
Posted: Sun Aug 29, 2010 1:35 pm
by Bethr
Amazing how we all get the good results from phlebs, yet our bloods are going in totally different directions .
Will be interested to hear your news on the low Hb Shye.
I'm off to have the re-test on my blood counts this afternoon.
Will be interesting to see where my hemoglobin is at.
I'm eligible for another blood donation now, but have to wait for this CBC test first. Might go in on Wednesday.
This round I'm feeling even better. I am sleeping through the night regularly. I am still getting very fatigued some afternoons, but only 25% of the time now. Earlier in the year it was 75%+. And I'm not really passing out any more either, I just kind of rest with my eyes closed for an hour and that seems to be enough. Prior to my first phleb I lapsed daily into what was like a semi-coma for around three hours. I'm not getting any chest pain, and very little never pain in arms and legs.
This is definitely working for me. I hate to think where I would be if I hadn't started to donate blood. It's quite scarey that I had to find all this out for myself. Doctors are just oblivious where I come from.
Posted: Sun Aug 29, 2010 2:35 pm
by shye
Bethr-
I think with the type of response we are getting, almost all drs everywhere are oblivious. We can't even find all the info we want on what is going on--we just trust our own evaluation of what is going on.
I have a dr that can be a real slouch on lots of stuff, but I'm lucky that she is willing to sort of listen, and trusts me enough to let me pretty much run the show re: this phlebotomy stuff.
Hope your bloods are okay for a phlebotomy again.
Posted: Sun Aug 29, 2010 2:58 pm
by shye
Merlyn-
thanks for the arterio link--it once again mentions possibility of Chlamydia pneumoniae as a cause--
my carotid and some of arteries in abdomen are showing sclerosis on xrays and ultrasound--not sure what from, diet pretty good, don't smoke--but blood pressure has been high,
I am doing the Calcium EDTA to help get rid of the deposits in arteries, but would like to address the cause of course.
So will get dr to run test for Chlamydia pheumoniae (this has also been mentioned elsewhere as cause for MS)....
I'm convinced the arteriosclerosis has to do with Zinc/copper problem--i seem to need an extra large amt of zinc.
This would interest you also Bethr--
I think my hemoglobin was low in recent test because i had stopped all zinc supplements for 4 days (and had lowered the amt considerably prior to that) in order to test zinc--low zinc can mess up hemoglobin, and so much more, including creating arteriosclerosis.
Interesting also was that got D level measured also at same time--and despite having gotten it way up for awhile, and taking 5000 IU per day along with 1-2 teaspoons of cod oil, was just 1 above the insufficiency level!!! Jimmylegs has posted that zinc deficiency impedes absorption of D !!! So I do think ZINC answers a lot of questions for me.
the lab screwed up the vials for the zinc, so had to redo test (after had already started back on low supplement)--should get results sometime this week.
But have also read in # of places that with porphyia, and pyroluria (which I test postitve for), need the extra zinc, and that blood tests don't often tell you this because it appears to be a utilization problem, not so much an amount problem. I do know (just as know operate better after phlebotomy) I operate MUCH better when take HIGH dose supplement of zinc (and low dose copper suplement).
And Merlyn, at least your dr is willing to consider doing a mini-phlebotomy, despite his skepticism--that in itself is pretty amazing.
Posted: Sun Aug 29, 2010 3:39 pm
by Bethr
Yes, great Merlyn that you have an open minded Dr. "Placebo" or not
I have finally in the past month started to take some zinc. Me, who never takes anything, drugs or supplements!
I purchased some Zinc, B6 & magnesium, all in one pill. I'm also taking baby aspirin daily (I won't take that today because of the test).
I've always found aspirin worked for me in the past, but the larger doses upset my stomach after a while and I had to give it up. So far so good with the small doses. Thought it was wise considering my high hemoglobin.
I also have some choline & inositol, and some fish oil.
Can't believe it, I'm turning into my father (the supplements man!).
He's always had a huge regime, as far back as I can remember.
Posted: Mon Aug 30, 2010 5:26 am
by shye
Bethr-
what will aspirin do re: high hemoglobin??
Posted: Mon Aug 30, 2010 9:50 am
by Bethr
Hi Shye, it helps to stop clotting/stroke etc that is a danger with high hemoglobin