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Greetings~I am new to this site

Posted: Fri Apr 30, 2010 2:55 pm
by GirlieGirl69
Hi, I was dignosed with RR MS that has progressed slowly over the years. I have tried all the " C R A B " drugs since finally getting an answer in March 1997.

My neuro wants me to start Tysabri, and being a former nurse, I am scared chittless! The PML is what I fear as I have one son still at home, who is soon to be 16 in October.

I thought I made my final decision as of this morning.........now, I am second guessing my decision. I sure could use some strong words, be them good or bad, in regard to starting Tysbri or not.

God Bless and Thank You,
Tammy

Posted: Fri Apr 30, 2010 4:50 pm
by lyndacarol
At this website you will find the complete range of opinion on Tysabri! I think the common suggestion for you would be to read the MANY posts here on Tysabri and to research it thoroughly. Tysabri is very powerful and has many possible dangerous side effects.

Consider it carefully!

Posted: Fri Apr 30, 2010 6:01 pm
by coach
Welcome aboard GG69. You'll find an assortment of info here and some really bright people. A very helpful site.

Posted: Mon May 10, 2010 7:03 pm
by AlmostClever
Hi GG!

Welcome and good luck with your MS journey!

Have you already started the Tysabri?

I'm kinda in the same boat - my neuro wants me to consider Rituxan but I'm not crazy about putting more drugs in my body before seeing how CCSVI pans out...

I've chased down a local GP who is working on getting me tested and treated if necessary. If it's a dead end for me, then I will consider moving on with other drug treatments. Time is a factor for me so it's really hard to wait!!!

It's worth looking into!

Cheers!

A/C