This Is MS Multiple Sclerosis Knowledge & Support Community

Hi everyone. I was diagnosed with MS 5 years ago when I was 20. I had no idea what MS was when I was diagnosed, there is probably alot I still don't know because I guess I tried to just go on living my life and ignoring it till the last year when it became to annoying to just ingore

I've never tried interferons, I've had steroids but my body really doesn't tollerate them well. I'm currently trying out colostrum but am unsure whether its worth continuing with which is what lead me here so if anyone has tried it please pm me or post what your experience was

I have tried it, and if anything, I think it made me ever so slightly worse. I do not think there is any strong clinical evidence for its benefit. Lipitor is what I have found to help me. But oral prednisone also helps me, but probably not you. By the way, welcome.

Welcome, i`m a newb also, but not a newb to MS. My best advice is not to be scared and don`t let negative thoughts and remorse take hold. My grounding tool is that you have to realise that no matter how hard this condition can be on you, there is always someone who is worse off. I know it gets hard dealing with terms like "uncurable" and "worsening progression" but remember, in the end,we all succumb to some condition or another, if we are lucky enough to last to an older age. Also, don`t accept any drugs or treatments that the medical community wants you to try without proper research from yourself. I, like the previous poster, have found a lot of them actually leave you worse off or just trading off one set of symptoms for another. I find a lot of the medications,if you look into them, are also mood stabilisers or anti-depressants or both and myself steer clear of anything that affects my mind or thoughts. But the best is trial and error and if you don`t like how you react to treatments or medication, you have the right to say no, and i have many times.
I think that within 10 years we will be rid of this condition and similar ones like Parkinsons and Lou Gherig`s, but that is my optimism.You are entitled to cope within your own mechanisms, but be aware there is a very big support group and information available, if you choose.
BTW, i told my first neurologist i "barely drank" when he told me he thought i had MS.` I thought he was saying sclerosis of the liver,hehehe.
Anyway, feel free to pm or correspond and will answer any inquiries to best of my ability(dis)...... Mercy

Hi guys, thanks for welcoming me

CureOrBust - How long did you trial the colostrum for?

Mercy - Thanks for the advice. It's pretty hard not to be scared but I guess its best to just take things one day at a time and not ponder on what may or may not happen. I'll remember what you'vve said about the medication side of things too

Courts wrote:CureOrBust - How long did you trial the colostrum for?

For about a week.