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Dear Editor:
During this past weekend of June 27th and 28th. I attended a family function where by an Ontario MS Society Ambassador was in attendance. Because I have MS my brother asked this Ambassador his thoughts on Dr. Zamboni and his Liberation Treatment. This was his quoted reply " Dr. Zamboni should be tied up and shot." One would assume being an ambassador for the MS Society that his views are in fact the views of the entire board during discussion behind closed doors.
I find it amazing that when I ask my neurologist a question about the disease, it's origin, the future, the purpose of the drugs I take weekly I get a consistent " well we really don't know." Now we have Dr. Zamboni who has a solid logical theory with answers that lay people can understand and digest. What organ in our body does not need a steady consistent flow of blood? If this was any other organ the procedure to unblock the vein would be performed asap in order to allow that organ to function properly.
From where I sit Dr. Zamboni has done nothing less then try and help people live better lives. He has been extremely successful so far in getting people out of their wheel chairs, feeling their limbs and working. Significantly more then my neurologist has done.
Hardly a reason to shoot him.
What is really going on at the MS Society and why do they have no interest in our well being?

http://www.publishaletter.com/readletter.jsp?plid=20475

Unbelievable -- somebody buy Dr. Zamboni a bulletproof vest.

Very well-written letter. I visited the link and rated it a "5."

Thanks for sharing.

Pam

Erinc14,

Thank you for not letting that horrible comment pass without confrontation in a logical and honourable manner. Efforts like yours are paving the way for all. The neglect by the mss and neuros is now bording on criminal, if not already at that level.

Sheila

That's probably the most incredible thing I've heard in a very long time. WHY would CCSVI cause anyone to feel like committing murder? What's wrong with them???

Did you, by chance, make this information available on FB? It might be a good idea. He deserves a good bite in the arse.

Hi erinc14

Thanks for letting us know about the use of inappropriate language from this 'MS ambassador'. If you do not wish to provide names, probably you could write a complaint letter to the MS society where this individual is offering his 'diplomatic' services. The language is inappropriate and reveals that is not qualified to be an ambassador of any serious institution.

I've encountered individuals of this sort who claim are only trying to help patients, yet with their non-expert opinions do more harm than good. I have written formal complaints to them and to their institutions. They are entitled to have their opinions, but they should not be allowed to mislead the public.


Rox

I sent it to the CBC but they've been a huge disappointment since the beginning ...very negative (aka fair and balanced).. CTV's W5 really got the whole ball rolling .

Would you please post your letter on facebook and if possible let us know
the name of the individual? At this point I am almost beyond
disgust but I think others should read this.

The new organizations that have been formed will be treatment
focused. I got to meet some of the scientists in the new consortium
and I must say I was humbled. It would be very
hard to find words to describe the brilliance and boldness of the
new projects planned to conquer this disease. Really exciting
and especially wow for the Pan-Vascular treatment group.

The best part is they have been working in these areas for a very
long time and want nothing to do with the ms society. True scientists.
Not one on the pharma or ms payroll. They have made me believe
again in science.

the email is by Mark Campbell.

he must be on FB.