A treatment for multiple sclerosis that upsets Big Pharma

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

.
Last edited by Lyon on Sun Nov 20, 2011 6:54 pm, edited 1 time in total.
User avatar
CCSVIhusband
Family Elder
Posts: 475
Joined: Sun Jun 27, 2010 2:00 pm
Location: Pittsburgh, PA USA
Contact:

Post by CCSVIhusband »

CCSVI is REAL ... Post removed by user
Last edited by CCSVIhusband on Fri Jul 16, 2010 1:37 pm, edited 2 times in total.
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

.
Last edited by Lyon on Sun Nov 20, 2011 6:53 pm, edited 1 time in total.
User avatar
PCakes
Family Elder
Posts: 850
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada
Contact:

Post by PCakes »

User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

PCakes wrote:

not a country fan, but that is HI-larious, pcakes.
thanks for the much-needed laugh
have a great day, all...going out in my maserti :)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
CCSVIhusband
Family Elder
Posts: 475
Joined: Sun Jun 27, 2010 2:00 pm
Location: Pittsburgh, PA USA
Contact:

Post by CCSVIhusband »

I certainly hope that's about the other guy ... cuz I'm exactly the same offline ... I have a feeling the other guy isn't :roll:

Like I said ... he's not worth dragging another thread down on ... that's the only reason I deleted the posts - (believe me, I very strongly believe every word in them).
User avatar
PCakes
Family Elder
Posts: 850
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada
Contact:

Post by PCakes »

welcome.. :)
laughter..best medicine of all!
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

.
Last edited by Lyon on Sun Nov 20, 2011 6:53 pm, edited 1 time in total.
User avatar
Trish317
Family Elder
Posts: 357
Joined: Sat Sep 06, 2008 2:00 pm
Location: Rhode Island

Post by Trish317 »

Lyon wrote:
CCSVIhusband wrote:You can leave them quoted if you like, or you can take the high ground like I'm going to try to do. Up to you ...
Personally I find the "high ground" is editing as little as possible.
Who's the guy in your avatar picture, Lyon?
User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L »

Trish317 wrote:
Lyon wrote:
CCSVIhusband wrote:You can leave them quoted if you like, or you can take the high ground like I'm going to try to do. Up to you ...
Personally I find the "high ground" is editing as little as possible.
Who's the guy in your avatar picture, Lyon?
I think it's the man himself.
Lyon
Family Elder
Posts: 6071
Joined: Wed May 03, 2006 2:00 pm
Contact:

Post by Lyon »

.
Last edited by Lyon on Sun Nov 20, 2011 6:53 pm, edited 2 times in total.
User avatar
Trish317
Family Elder
Posts: 357
Joined: Sat Sep 06, 2008 2:00 pm
Location: Rhode Island

Post by Trish317 »

Lyon wrote:It's a picture of Brad Paisley and since this is cyberspace you're supposed to wonder if I'm really Brad Paisley who is just pretending to be a hick or if I'm really a hick who is pretending to be Brad Paisley.

I've gotten myself mixed up during the explanation so even I am not sure anymore.
oh....lol! I'm not a country-western fan but I know who Brad Paisley is. Actually, I was just wondering who the HOT guy is. :D
User avatar
scorpion
Family Elder
Posts: 1323
Joined: Wed Nov 05, 2008 3:00 pm

Post by scorpion »

I am curious if people truly think the "pharmas" sit around all day worrying about CCSVI? I mean the way it sounds on here it is like there the big "pharmas" have developed a secret commission to try and figure out ways to discredit CCSVI. MS is a rare disease and although there is money to be made from us it certainly pales in comparison to other diseases such as diabetes and heart disease. I have a friend who works for Pfizer and he has never even heard of CCSVI. This is not a post to discredit CCSVI but I really do not think the "pharmas" are overly interested in discrediting CCSVI.
User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L »

scorpion wrote:I am curious if people truly think the "pharmas" sit around all day worrying about CCSVI? I mean the way it sounds on here it is like there the big "pharmas" have developed a secret commission to try and figure out ways to discredit CCSVI. MS is a rare disease and although there is money to be made from us it certainly pales in comparison to other diseases such as diabetes and heart disease. I have a friend who works for Pfizer and he has never even heard of CCSVI. This is not a post to discredit CCSVI but I really do not think the "pharmas" are overly interested in discrediting CCSVI.
I don't personally believe that big pharma is attempting to discredit CCSVI (I am a very trusting person who believes that everyone has my best interests at heart), but the people who do believe so aren't talking about Glaxo, for example, they are talking about the likes of Biogen and Teva who rely on MS drugs for their income. I would imagine that they are concerned. They would be crazy to be looking for a cure and something that could possibly turn out to be a cure must worry them somewhat. Imagine, for a start, what will happen to their shares if it proves to be the case that people do not require expensive weekly injections. Imagine what will happen to their income. They would be foolish not to be imagining these things themselves. We are their bread and butter..
Last edited by L on Fri Jul 16, 2010 6:06 pm, edited 2 times in total.
User avatar
eric593
Family Elder
Posts: 484
Joined: Sun Feb 17, 2008 3:00 pm
Contact:

Post by eric593 »

Surprisingly, Big Pharma seems to have been very quiet about this.

The only comment I have heard is positive, where the makers of Gilenia (I think?) commented that Gilenia may be a good interim treatment until vascular treatment gets up and running and the research results are in.

That's the only Big Pharma comment I've heard.

Does anyone have any other comments that have been made?
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”