Ziv J Haskal Assuming that you are symptomatic and wishing to explore CCSVI treatment, you've had enough done ( with that MRV ) to move ahead and discuss venographic interventions ( treatment ) with a qualified interventional radiologist.
Ziv J Haskal Ms Rowe-- these are 'early days' with respect to many aspects of ccsvi, of course-- science, research, defining outcome and predicting who will most benefit, durability, etc. There is not uniformity to what and how extensively to treat duri...ng venography-- there are mutiple causes of vein compression-- some which will not improve with just a balloon. A real meticulousness has to be part of therapy, lest one over or undertreat. An example: In one week, 4 patients I recently treated had four wholly different causes of narrowings in the treated veins.
Interested IRs will resumably gain experience over time as we teach them.
Ziv J Haskal The Endovascular Today article is a good and measured article, though not peer-reviewed. Use it as a useful starting tool, but recognize that you are still likely, in these early days, to need to directly approach an experienced interventional radiologist about potential treatment-- and one who is committed to become g...ood at it.
There are multiple and different causes and levels of compression or stenosis in the affected veins: treatment, diagnosis, efficacy and durability are all affected by technique and care.
To maximize potential treatment benefit, it should be done carefully and methodically. This is important for individual patients, (and the progress, for all others that follow).
These are early days, yes, but the benefits, when we see them, are amazing-- so much so that it has become a consuming clinical and transformative treatment area for me (and my practice).
Continue to encourage the science, as you use your advocate voices, and seek therapy.
Ziv J Haskal MD FSIR FAHA FACR
Professor of Radiology, Vice Chair
Chief, Vascular and Interventional Radiology
University of Maryland
Baltimore, MD
Ziv J Haskal Ms Puglisi, sorry about your phone tag. write us as [email edited out] if need be. I've added two ccsvi nurses, so we should be able get back to you much more readily, as for all patients. (We've also added many more times for actual treatment, so wait times should be short.)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
