Neurology Now
- fogdweller
- Family Elder
- Posts: 412
- Joined: Tue Dec 08, 2009 3:00 pm
Very interesting, and not nearly as negative as virtually everything in the neurology arena so far. I found myself being very sceptical and hostile, just because I have developed a hostile attitude toward neuros as a result of their non-sciedntific and puzzling negative approach to something that ought to spark real excitment in the community of doctors treating MS. This article was not really negative at all, but was exceedingly cautionary. The neuros are not hearly as cautionary about using drugs, even drugs with horific side effects and very little proven benefit.
One comment I take exception to. Dr Corboy“Claims of improvement are based only on comparison to patients themselves prior to the procedures,” he says. “No one would accept this as evidence of a treatment effect in MS.” I think this is evidence, just very weak and certainly not conclusive evidence, but when given the number and nature of improvements, especially as wittnessed by many treating physicians, it is intriguing evidence to be sure.
One comment I take exception to. Dr Corboy“Claims of improvement are based only on comparison to patients themselves prior to the procedures,” he says. “No one would accept this as evidence of a treatment effect in MS.” I think this is evidence, just very weak and certainly not conclusive evidence, but when given the number and nature of improvements, especially as wittnessed by many treating physicians, it is intriguing evidence to be sure.
Yes, it's easy to get the sense that the entire medical community and MS world has been thrust headlong into the ccsvi discussion. Nothing could be further from the truth. Considering there's over 500,000+ (I'm sure it's much higher) in the US alone, multiple thousands of hits views and/or member numbers pales in comparison, keep in mind also that this and other venues are worldwide, which waters the numbers down even further. (Not to mention that a goodly number of people don't even use the internet on a regular basis) That being said, when I had occasion to visit the ICU unit last week (not as a patient), the nurse I queried had indeed heard of CCSVI..scorpion wrote:Honestly Lyon I think that 99.9% of medical providers have not even heard of CCSVI.We have spent so much time on this forum that I think we have become CCSVI obsessed.
I never waste oxygen when going into a hospital, such fertile ground... ;)
Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
- 10yearsandstillkicken
- Family Member
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- Location: Sactown, CA
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I mentioned my interest in CCSVI to my physiotherapist who works as part of the ms team with my neurologist. The reply was that they had discussed it as a 'team' and dismissed it until further research had been done. I therefore did not discuss it with my neurologist 'cos I don't want to be advised against it (- this would invalidate travel insurance). A feew neurologists at least thinking about it might influence others to take a second look.