The encyclopedia needs updating with allof the medicalwords,jargon and abbreviations.
A how to get diagnosed and the MacDonald Scale and Diability scales would be very helpful.
Also theories section- AutoImmune vs CCSVI explained.
It took me a long time....too long to undestand the disease and most of it was not from here and all of that should be here
Thanks
more Basics for a New Patient & Family.
- MegansMom
- Family Elder
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more Basics for a New Patient & Family.
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
Re: ThisIsMS Encyclopedia
Thanks for the suggestion. You may wish to look through the following site.
http://www.mult-sclerosis.org/wholeglossary.html
NHE
http://www.mult-sclerosis.org/wholeglossary.html
NHE