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For those of you that have Restenosed, what where some indications of restenosis. I know some symptoms that had gone away may come back.

Did you experience any pain in your neck? Other?

How long after you restenosed did you have a follow up procedure to correct it? And what where the results of the second procedure?
thanks
bmk

bump

I too would be interested to hear from others who have restenosed. I had my liberation on Aug. 24th, two balloonings on left jug and one on right. I have been experiencing shooting pain high up in the left jug, which feels like it radiates through my head . I wonder if this is a sign of restenosis, would appreciate anyone who has experienced this to comment and shed some light. I am SPMS, so far, no major improvements, but I'm trying to stay positive.

I had my original procedure on March 3, 2010. Many symptoms improved immediately, including walking and balance. About two weeks later the walking and balance started getting worse. I know now that that is when I began restenosing.

I had no pain, but I also believe that I restenosed so quickly because my doctor was too conservative. That was o.k. with me since I was his first patient.

I was retreated July 30th, five months after the first procedure. I would have done it sooner, but it took me that long to find another doctor with more experience, and the time to treat me.

It has been six weeks since my second treatment and I feel great. Check out my blog (address is below) for more details. Hope this is helpful!

Nicole

Thanks for the info.
bmk

I had a sharp ache in my right neck, moving up over the next day or so. This was about 3 weeks after treatment. The left side never hurt, but the dr found both blocked when I went back 3 mos later for another venogram.

The doc thinks it's because he used too small of balloons the first time; used much bigger (20mm) 2nd time. So far it's been 3 weeks with no pain or loss of benefits (that sound you hear is me knocking on wood).

I relapsed severely, developing new symptoms. I know that I restenosed before I left the hospital as the immediate improvements of better cognition and spasticity disappeared on the morning I was flying home from Poland. I immediately had a relapse and so it was very obvious.

Claire

i had angioplasty RJV may 6th, PPMS, and had significant improvements right away, brain fog, spascicity lessoned, pain went away, speech improved, no more sluring my words, bladder worked better etc, but i knew i was restenosing because all my symptoms returned. that's how you tell.

i got a stent this time RJV august 26th. its a much slower healing....my improvements right away were fog lifting in my head, but the rest is subtle, i think the pains in the head are from the wire. it goes up quite a ways further than where the ballooning, or stent goes. mine is low, but my jaw aches still, and my R arm and shoulder is causing me grief too. the pains in my head on the R side and back, finally left, although sometimes i can't stand my hair moving it hurts so much, my hands are unclawing slowly, when they at first were so much better.

restenosing, for me was nothing more than all my improvements leaving. i say nothing more but yes, its a crushin blow. these days i improve, so slow sometimes i wonder, but i am doing a scale thing, and it keeps climbing. 3 months is my goal post for all the niggly things to go away.

good luck to all. its new, we have to persevere.