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How did you learn about CCSVI?

Posted: Tue Nov 02, 2010 1:36 pm
by cheerleader
If you're on Facebook, come on over and take the CCSVI Alliance survey.
No negative campaign ads, no robo calls, no punditry, no election frenzy. You just have to "like" us to comment.
One question...
How did you learn about CCSVI?
polls close at 8pm PST, and results will be posted on the page--

http://www.facebook.com/pages/CCSVI-All ... 2427429118

thanks!
cheer

TIMS and CTV

Posted: Wed Nov 03, 2010 6:04 pm
by Gordon
TIMS and CTV

Thanks Cheer

Posted: Wed Nov 03, 2010 6:08 pm
by cheerleader
You're welcome, Gordon....CTV was the big winner in our informal survey--From Facebook
RESULTS are in:
a. web forum ---30
b. Facebook ---18
c. Newspaper ---9
d. blog----------5
e. friend or family--17
f. doctor----------2
g. Television-----70
h. You Tube-------2
i. other----------1

The biggest winner was Avis Favaro's CTV W5 report! Congratulations and thanks to Ms. Favaro!
Web Forums (mostly ThisIsMS.com) was the runner-up
with Facebook and Friends and Family a tie for third

Thanks to all who participated! Stay tuned for more CCSVI Alliance surveys-

Posted: Wed Nov 03, 2010 7:48 pm
by PCakes
cheerleader wrote:"...we have an amazing online community.
I'm just one gal who loves someone with MS. Really.
My best to everyone fighting to cure this horrific disease,
Joan"
Joan Beal ~ Jan 5, 2010 **
The 'how' varies.. The 'who' is constant.
Thank you

**

Posted: Wed Nov 03, 2010 7:54 pm
by dunkempt
The 'how' varies.. The 'who' is constant.
Thank you
Me too.
-d

Posted: Thu Nov 04, 2010 5:03 am
by MaggieMae
Can you imagine when CCSVI finally gets national TV attention.

Posted: Thu Nov 04, 2010 6:30 am
by dunkempt
Can you imagine when CCSVI finally gets national TV attention.
:-) What happened up here was that everyone in the country who knew you had MS thought of you, and got in touch to make sure you heard about this Zamboni thing too, and then it did start to become a political issue.

And yet we still had to leave the country for diagnosis or treatment...

-d