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NICE (UK) publishes Info and looks into CCSVI
Posted: Fri Apr 15, 2011 5:57 pm
by steviebhoy
Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891
will anyone enlighten us to what, if any signicance this is??
Thanks
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Highly Significant
Posted: Sat Apr 16, 2011 2:41 am
by MarkW
This is highly significant for UK. I would hope that CCSVI-UK organisation co-ordinates responses. I will submit to NICE personally.
MarkW
edited to correct grammar, then spelling.
Re: NICE (UK) publishes Info and looks into CCSVI
Posted: Sat Apr 16, 2011 3:00 am
by silverbirch
steviebhoy wrote:Don't know how important this is, but have just had an e-mail detailing that NICE is looking into the issues, they deem what should be done on NHS etc
http://guidance.nice.org.uk/IP/891
will anyone enlighten us to what, if any signicance this is??
Thanks
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NICE is the UK govering body for procedures
Posted: Sat Apr 16, 2011 6:22 am
by steviebhoy
It was CCSVI-Uk that have initiated this, though not connected with MS, they have assumed this is connected???
Please Explain
Posted: Sat Apr 16, 2011 7:38 am
by MarkW
Who initiated this investigation by NICE ? MarkW
Posted: Sat Apr 16, 2011 7:47 am
by cheerleader
I first reported this last August:
National Institute for Health and Clinical Excellence (NICE) in the UK is monitoring progress and interest in angioplasty for CCSVI-
(This is a 180 from the official stance on "widening veins will not help pwMS" made last December--)
For UK residents to Register Interest:
http://guidance.nice.org.uk/IP/891
cheer
and you replied, Mark...
http://www.thisisms.com/ftopic-13240-0- ... -nice.html
I hope this means they are continuing the monitoring,
cheer
NICE Investigation !!
Posted: Sat Apr 16, 2011 8:02 am
by MarkW
Hello Cheer,
I have written for an influential newspaper but not submitted the dossier of data I would expect that NICE require. Are EHC behind this??? I suspect from the wording that an anti CCSVI group has asked for this NICE investigation in order to block simple balloon venoplasty or even testing in UK.
I will dig during the coming weeks.
MarkW
Posted: Sat Apr 16, 2011 1:23 pm
by steviebhoy
See my last post Mark, not EHC
Process Is Critical
Posted: Sun Apr 17, 2011 4:59 am
by MarkW
If CCSVI-UK started this investigation you/they have shot themself in one foot with the title of the investigation. Referring to stents plays into the neuros hands by allowing them to cite patient deaths.
If NICE blocks balloon venoplasty then CCSVI in the UK will be set back 3-5 years.
If the person who submitted the investigation wants advice just get them to contact me. I worked as a pharmaceutical consultant for many years so have a basic knowledge of NICE.
MarkW