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Best Campath Candidates?
Posted: Tue May 03, 2011 5:00 pm
by Looking88
Are the best candidates for Campath young people with highly inflamatory MS?
I am hoping it has worked for those with few or no lesions also.
Thanks,
Looking88
Posted: Fri May 06, 2011 11:10 pm
by raven
The most successful Campath recipients appear to be those with early stage aggressive RRMS it appears to be less or, non-effective for SPMS / PPMS.
HTH
Robin
Posted: Wed May 11, 2011 5:55 pm
by freiguy
Hey Robin how are you doing? I agree with you on this. I got in the trial right after I was diagnosed and so far so good.
Posted: Fri May 13, 2011 11:41 am
by raven
I'm good, thanks. Trying to balance an extremely demanding job with a home life which in a way is testament in itself to the treatment.
I'm glad you got in early, It was 5 years after diagnosis before my first treatment and I still have residual defects which perhaps, had I been treated earlier, may never have happened. But, in the great scheme of things, I still consider myself extremely lucky to have been treated when I was. There is no doubt in my mind that without the intervention I would be in a far worse place right now.
Stay well.
Robin
Posted: Fri May 13, 2011 4:59 pm
by Looking88
Thank you both Freiguy and Raven. So may I ask how long has your MS been stopped?
I have a loved one that has not been diagnosed yet, but I am very concerned. The only good thing is it does seem to be relapsing. I am examining all curative treatment options. Campath, MIST, HSCT.
I know there are people 10 years well with HSCT. Have any Campath users reached the 10 year mark?
Sorry for all the questions, and thanks.
Looking88
Posted: Fri May 13, 2011 10:31 pm
by raven
Hi looking,
I've been stable for 6 years (first treatment April 2005) The earliest that I know of is David Stuart who posts his story here:
http://www.mult-sclerosis.org/DavidsStory.html . He is approaching the 10 year mark.
Regards
Robin
Posted: Sat May 14, 2011 5:15 am
by Looking88
Thanks for sharing Raven. A very inspiratonal page.
I think we are at the point where anybody newly diagnosed with RRMS should give Campath a shot (unless they want to try something stronger, such as Campath plus Rev-immune (the MIST trial)).
Regards,
Looking88