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Getting ready for CCSVI in Albany...
Posted: Thu Oct 20, 2011 8:06 am
by northerngirl9
Hi! I am new to this site (not MS - I have been RR for almost 20 yrs) and am hoping for a bit of help...I am scheduled to go for CCSVI surgery in November with Dr. Mandato, but I am curious when I read about people whose veins 're-stenose'. If that is a possibility, even a slim one, why don't they use stents for every procedure? I do understand blood clot risks, etc., but the benefits seems to outweigh having to redo the surgery...?
Re: Getting ready for CCSVI in Albany...
Posted: Thu Oct 20, 2011 8:54 am
by Lyon
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Re: Getting ready for CCSVI in Albany...
Posted: Thu Oct 20, 2011 9:20 am
by euphoniaa
northerngirl9 wrote:Hi! I am new to this site (not MS - I have been RR for almost 20 yrs) and am hoping for a bit of help...I am scheduled to go for CCSVI surgery in November with Dr. Mandato, but I am curious when I read about people whose veins 're-stenose'. If that is a possibility, even a slim one, why don't they use stents for every procedure? I do understand blood clot risks, etc., but the benefits seems to outweigh having to redo the surgery...?
Hi northerngirl, and welcome!
If you want to find information about CCSVI - more information that you can possibly even read before November

- please check out this link to the CCSVI Forum here at TIMS - entirely devoted to CCSVI:
http://www.thisisms.com/forum/chronic-c ... ccsvi-f40/
There are several general information threads to read, but you can also post specific questions and should get much more response than here in the Introductions Forum.
Good luck!
P.S. I just checked and there are now 5,523 threads (or topics) in the CCSVI forum.

Re: Getting ready for CCSVI in Albany...
Posted: Sat Oct 22, 2011 6:31 am
by want2bike
Opening up the veins in the body can only be a good thing but there are risk to any medical procedure. THere have been studies done concerning this procedure. Diet is also a way of opening up the arteries in the body. Dr. Swank has an excellent diet which addresses this problem.
http://online.wsj.com/article/SB1000142 ... 10380.html
http://www.franksherwood.com/tnms.htm
Re: Getting ready for CCSVI in Albany...
Posted: Thu Oct 27, 2011 10:34 am
by northerngirl9
Thanks everyone - for your thoughts, links and support! I really appreciate it!