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MSRC Launch Gilenya User Diaries
Posted: Wed Mar 28, 2012 6:23 am
by MSUK
MSRC Launch Gilenya User Diaries.
Following on from the success of our Tysabri User Diaries in providing personal experiences of MSers on a drug, MSRC have today launched a new facility for those taking, or thinking of taking Gilenya, the first approved oral MS medication.
http://www.msrc.co.uk/index.cfm/fuseact ... geid/3403/
Kim has become our first diarist and you can read her page at
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3404
If you are taking Gilenya, or are contemplating using it, and would like to join the Gilenya Users panel please contact our webmaster at
squiffy@msrc.co.uk
Re: MSRC Launch Gilenya User Diaries
Posted: Wed Mar 28, 2012 8:31 pm
by NHE
Gilenya scares the heck out of me. I’m a big enough woman to admit that. The materials they send before you take the drug seem cheerful enough; page after page of photos showing smiling people carrying motorcycle helmets through flea-markets or bird watching or strolling on sunset beaches BUT each page was also filled with dire warnings about side effects I’d never even imagined.
Didn't the CRAB pharmas receive warnings from the FDA for similar tactics?
NHE
Re: MSRC Launch Gilenya User Diaries
Posted: Mon Apr 02, 2012 3:42 am
by MSUK
New MSRC Gilenya Diarists
Mike and Liz have joined the MSRC Gilenya Diarist Panel.
You can read their first entries at
http://bit.ly/HO7sSP &
http://bit.ly/HHrhQm
Re: MSRC Launch Gilenya User Diaries
Posted: Tue Apr 10, 2012 12:28 am
by MSUK
Kim's Gilenya update April 10th, 2012
Kim has updated her MSRC Gilenya Diary.
You can read Kim's latest entry at
http://bit.ly/H3mnOT
Re: MSRC Launch Gilenya User Diaries
Posted: Mon Apr 23, 2012 1:50 am
by MSUK
MSRC Gilenya Diary Update
Mike has sent in his first update to his Gilenya Dairy.
You can read this at
http://bit.ly/HO7sSP
Re: MSRC Launch Gilenya User Diaries
Posted: Mon May 14, 2012 6:19 am
by MSUK
MSRC Gilenya Diary Update
Kim has sent in a new Gilenya Diary Update.
You can read it at
http://bit.ly/H3mnOT
New MSRC Gilenya Diarist
Posted: Fri Jun 15, 2012 5:31 am
by MSUK
New MSRC Gilenya Diarist
Debbie has kindly joined our team of Gilenya Diarists.
You can read her first entry at
http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3481
Re: MSRC Launch Gilenya User Diaries
Posted: Mon Jan 21, 2013 12:09 am
by MSUK
MSRC Gilenya Diary Update
Toots Mstruth has sent in her latest Gilenya diary update
You can read this at
http://bit.ly/KfRx0b