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I AM BEING PUT ON TYSABRI BUT I AM SCARED OF THE SIDE EFFECTS CAN YOU PLEASE SHARE YOUR TYSABRI STORY WITH ME.

amitsachdev1 wrote:I AM BEING PUT ON TYSABRI BUT I AM SCARED OF THE SIDE EFFECTS CAN YOU PLEASE SHARE YOUR TYSABRI STORY WITH ME.

Hello amitsachdev1, and welcome!

There is an entire subforum here at ThisIsMS devoted entirely to Tysabri threads & discussions, so you should definitely check it out. Here's the link to make it easier to find (I hope):
http://www.thisisms.com/forum/tysabri-a ... zumab-f11/

There are also separate subforums on all the other MS meds and treatments. I know it takes some time to figure out how to navigate through the areas here, but there's lots of information and people to help once you do. Make yourself at home!

Yes, I have taken Tysabri for nearly 6 years and I am JCV positive.

Prior to Tysabri I was using a wheelchair and brain cognition was a severe problem. I am now walking without crutches or a cane and I published a 240-page memoir in 2011.

vbeachy wrote:Yes, I have taken Tysabri for nearly 6 years and I am JCV positive.

Prior to Tysabri I was using a wheelchair and brain cognition was a severe problem. I am now walking without crutches or a cane and I published a 240-page memoir in 2011.

THANKS for your feed back. It really helps

I felt amazing on Tysabri, my sight became clearer immediately (I didn't even realize before that it had blurred at all) I was sharper, I had more energy. I still think it was basically the greatest thing ever.

Unfortunately I developed an allergy to it within 6 months, but from what I understand this is relatively rare, and because you're at the hospital when they do it, and they will be able to test you for the antibody before you next dose, it's not dangerous, just irritating that I cannot stay on it.

Of the drugs I've been on Tysabri was imo the best, I'm hoping someone comes up with something similar that is different enough to trick my immune system.