undiagnosed..sort of
Posted: Sun Aug 25, 2013 2:05 pm
I am new here. Im a 25 year old female and have had a long two years dealing with what was first considered trigiminal neuralgia and now points to MS. My aunts on both my mother and fathers side have ms and so do my great aunts. My father was skipped and my mom diagnosed with chronic fatigue syndrome and fibromialgia. After the birth of my last and 4th child i began to experience eye twitches, migraines, extreme fatigue and pain and numbness in my face and arms. The pain was crippling and was immediatly diagnosed with trigiminal neuralgia and placed on tegratol and loratab for pain. Not gettinf any better i was referred to a neuro who sent me for 2 different brain mris that concluded i have lesions and black holes..lots of grey matter but the neuro said i was too young for msand he sent me to a neurosurgeon who told me there was no way i had trigiminal neuralgia and to investigate the possibilites with ms with my neuro. This went on for a year ans i was in a bad car wreck that they thought caused wry neck and a spinal injury. Now after a spine mri that was negative im being told once again to follow up wirh my neuro. The pain that radiates in my arms and the numbness i feel in my hands and legs..the burning the decreased eye sight..most days i can barely get my hands to do what i want them to. Upon receiving my letter to confirm my apt the notes said for follow up ob ms symptoms. To be honest i had hoped it was a spinal injury instead..but my question to any and all is what do i do now? Im at the point i cant work and im just so tired of all this. Does this seem to be ms? My family says yes and my neuro options are small in my town ..what would you do? Any and all advice is appreciated..also does anyone experience pain near hip that cant even be brushed by fabric??? Thank you all for reading.