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Hello from way up north , Norway!

I have a friend that will help me get the MS Nut medicine from Iran.
Has anyone in here tried it? Also would you dare to try it when it is a unregistered medicine in your country? Im thinking about the side effects etc.

Any input highly appreciated

Helleborus wrote:Hello from way up north , Norway!

I have a friend that will help me get the MS Nut medicine from Iran.
Has anyone in here tried it? Also would you dare to try it when it is a unregistered medicine in your country? Im thinking about the side effects etc.

Any input highly appreciated

There is very little known about this medication and the trial data is skimpy and non reliable. Needless to say, it has not been put through the standard of investigation that we are used to seeing. If you decide to try it, make darn sure there isn't the possibility of nasty side effects...which will be difficult to know in advance due to the limited data that has been made available.

Harry

Isn't this just black cumin - Nigella Sativa, which is seen as Kings cure all in the Islamic world.

It may have some therapeutic benefits but don't except miracles.

Thanks guys for your replies. I agree that the medicine has not been through the standard testing time and I really dont know what kind of plants it is based on, and I dont know how to find out if there is any sideeffects since the medicine is so new.
Im newly diagnosed and Im offered the standard medicins (copaxone, avonex etc) - but I dont want to take them, that is why I thought that the ms nut wich is natural would be safer...

mrbarlow wrote:Isn't this just black cumin - Nigella Sativa, which is seen as Kings cure all in the Islamic world.

It may have some therapeutic benefits but don't except miracles.

You might want to read some of Gibbledygook's experiences with Nigella sativa.
http://www.thisisms.com/forum/search.ph ... mit=Search

Helleborus wrote:Thanks guys for your replies. I agree that the medicine has not been through the standard testing time and I really dont know what kind of plants it is based on, and I dont know how to find out if there is any sideeffects since the medicine is so new.
Im newly diagnosed and Im offered the standard medicins (copaxone, avonex etc) - but I dont want to take them, that is why I thought that the ms nut wich is natural would be safer...

Just because something is natural doesn't necessarily mean that it's good for you, or good for MS. Tetrodotoxin is 100% natural for example.

Helleborus wrote: Im newly diagnosed and Im offered the standard medicins (copaxone, avonex etc) - but I dont want to take them, that is why I thought that the ms nut wich is natural would be safer...

Helleborus, for me it was exactly the same.
If I may give you a piece of unsolicited advice, get your neck veins checked and get your gut back in order.
take your time to look at this video http://articles.mercola.com/sites/artic ... -gaps.aspx
you may also wish to look on "Overcoming Multiple Sclerosis" and take advice from there. http://www.overcomingmultiplesclerosis.org/
I wish I would have known these when I was first diagnosed...

Definitely agree with your advice Leornard, and im doing everything I can diet wise. I don't necessarily stick to any of the most well known (OMS, Wahls, Swank, etc) 100% as they are a tad contradictory in certain things, but definitely complying with the important guidelines.

The question I have is with regards to CCSVI. I live in Spain and at least here no Neurologist will send you for these tests. I'm just wondering, since I have private health insurance, what area/speciality would carry out these tests?

I definitely think circulation has something to do with all this, and CCSVI definitely helps with this.

zjac020 wrote:The question I have is with regards to CCSVI. I live in Spain and at least here no Neurologist will send you for these tests. I'm just wondering, since I have private health insurance, what area/speciality would carry out these tests?

Well, you could start with a screening done using Doppler ultrasound. The definitive test would be intravascular ultrasound (IVUS) which would be performed by an interventional radiologist. This involves putting a catheter into the vein with a small ultrasound probe. See Dr. Sclafani's site for more information. http://www.ccsvicare.com/

I think that the echo-Doppler is the best instrument to diagnose ccsvi in the internal neck veins.
There are doctors here in Europe who must have seen at least a thousand patients and have huge expertise and experience.
They can tell you in 5 minutes whether your veins are ok or not, non-invasive.

I have gone back for check up every year after my liberation from ccsvi.
Last time I took my two eldest kids who are in their early twenties for them to get their neck veins checked.
Thank God they were found to be ok.
I am confident that they will not develop MS at a later date because their BBB remains in tact.
They may get diabetes 2 because there is some predisposition but no MS.

It was interesting to see two doctors.
There was the specialist who has done the 1000+ diagnoses, but there was also another doctor.
They showed and explained what they were doing, what they saw on the monitor when they pressed the veins with the pod.
Very interesting, very comforting as well, these people knew exactly what they were doing!

As there is some genetic component in the growth of the veins that may pass from one generation to the next,
I think every decendent of an MS patient should get an echo-Doppler check of his or her internal neck veins.

What I would have done if the echo-Doppler check of my kids would have shown stenoses, I do not know.
But what I do know is that an answer by neurologists as nothing is proven and therefore do nothing would not have been good enough.

To the opening poster: let us know the effects if you take it

"Last time I took my two eldest kids who are in their early twenties for them to get their neck veins checked.
Thank God they were found to be ok.
I am confident that they will not develop MS at a later date because their BBB remains in tact."

Of note, assuming no other relatives with multiple sclerosis, the risk of a female child of a person with MS of developing MS is estimated to be only about 3-4%. The risk of a male child is lower.

Of course, this risk may be increased it there are other relatives with MS.

It would be more worth your while to encourage your children to start regular exercise programs and to keep a proper low glycemic-index diet than to worry about MS

centenarian100 wrote:To the opening poster: let us know the effects if you take it

"Last time I took my two eldest kids who are in their early twenties for them to get their neck veins checked.
Thank God they were found to be ok.
I am confident that they will not develop MS at a later date because their BBB remains in tact."

Of note, assuming no other relatives with multiple sclerosis, the risk of a female child of a person with MS of developing MS is estimated to be only about 3-4%. The risk of a male child is lower.

Of course, this risk may be increased it there are other relatives with MS.

It would be more worth your while to encourage your children to start regular exercise programs and to keep a proper low glycemic-index diet than to worry about MS

I agree, exercise and a low glycemic-index diet is good, for anyone.

they don't really worry about developing MS, they are working on their studies, careers, on their future..
notwithstanding, it was a relief to all to see they had no strictures in their neck veins..