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I had my CCSVI procedure done by Dr. Sclafani in Brooklyn. I loved him & his wonderful staff. I had my first follow up ultrasound at his office.

After that, I wanted someone closer to where I live (California) to do my ultrasound re-checks. I tried a certain Newport Beach CCSVI practitioner's office, & was VERY disappointed. The Dr. inserted himself, when he knew I was Dr. Sclafani's patient & was there just for a recheck ultrasound ordered by Dr. Sclafani. He said, "well, you are HERE now." He even forced a prescription for Cymbalta into my hand. He said "it might help". I said I didn't want his Rx, but I would ask Dr. Sclafani about it. I tore his Rx up. Then we got his FIRST billing to us 14 months after we visited his office. Our insurance has changed during this time period & soon we started receiving collection calls. All in all, not a good experience.

So I started looking for another CCSVI literate ultrasound tech closer to home than Brooklyn. Marie Rhodes posted a while back that she had seen "Eric Fiegenbutz two years later to check my post treatment blood flow--he was directly trained in Zamboni methods". So off to Phoenix we went to meet Eric.

I was thrilled! He knew what I was talking about & what I had done. He knew what he was looking for. He answered all our questions gladly. He even followed up with Dr. Sclafani personally. He has been to most of the CCSVI conferences & knows most of the CCSVI doctors. HALLELUJAH!

I highly recommend Eric for those of us who live on America's west side. His office is in Phoenix, very close to the Phoenix airport. I have had two re-checks with Eric now. With the first, we spent the night at a hotel & returned home the next day. With the 2nd re-check, we flew into Phoenix in the morning, saw Eric, flew home & slept in our own bed that night. Mighty convenient to see someone who knows this CCSVI stuff! Check out his website http://ccsvi.azdoppler.com/team/ & decide if Eric might be a good fit for you.

My best to all of you.

QueenMum, what information are you getting at the CCSVI rechecks? Are your veins staying stable over time?

I've been getting rechecks that show that my veins are still open. I was already pretty sure based on symptoms that my veins are still open but maybe not as widely open as they were right after treatment. I think exercise may actually be my best medical treatment right now, both theoretically for increasing blood flow and practically because it seems to make me feel better and increase my color vision, which is weird.

Sorry you were caught in that dragnet. Reprehensible and you are definitely not alone. I believe I met some of the AZ Doppler gang at that symposium down in San Diego a few years back. Good bunch. Glad it worked out but sorry you had to go the circuitous route. Some Doctors are a shame to their profession.
Mark