Gilenya Side Effects?

Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.
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simonelea
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Joined: Tue Aug 12, 2014 9:00 pm
Location: Melbourne Australia

Gilenya Side Effects?

Post by simonelea »

I have been taking Gilenya since March 2013 and after 9 years on Betaferon it's been brilliant. However this year it seems like the side effects have started to kick in. Around Easter 2014 I started experiencing low back pain, but only when I am lying down to sleep. Some nights are ok, but other nights it's really painful. When it is bad I find it very difficult to turn over and even if I do change positions it does not seem to reduce the pain.
I also have bouts of nausea, diarrhoea, or both at the same time. A bit annoying when I have to take a day off work to recover. I guess these are possibly side effects, should have mentioned this to my neuro at my recent appointment but forgot to! :?
Keep smiling!
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