This Is MS Multiple Sclerosis Knowledge & Support Community

Hello all
New to the group. I am researching. My neuro wants to test me for MS. I have been having unexplained migraines for going on 6 years, and they severely Impact my wk and daily life.

I have looked over the other symptoms, which I believe I can fall into, but can be vague.
B-12
V-D
I have an optical Nevis
Bladder issue...
Fatigue (who isn't)
Extremely LOW BP which I always accounted for my dizziness etc
Same with low heart rate
My concern is I had a normal MRI 5 yrs ago...and a normal CT a yr ago.
I just want answers....

Are most of u able to keep workings?

i have only had serious migraines twice and they definitely disrupted my ability work. i have had minor migraine-related visual disturbances a few times over the last couple of years, basically since i started messing with high dose supplements. i am pretty much still borderline with magnesium and if i take some when i notice a scintillating scotoma going on, i can clear it up in no time.

i have also had very low BP which i can fix with hydration. your nutrient status has to be ok to benefit properly from drinking water however.

i've had b12 deficiency, no fun at all and if it is plausible for you, no harm ensuring you meet daily minimums in diet. you can be falling well short of dietary recommendations, but still have technically 'normal' bloodwork so that might be something to consider. for a variety of essential vitamins, minerals, fats, etc.

if you search the forums for posts by me to others you'll find the kind of details/advice i typically provide to interested readers if you have any questions feel free to ask!

forum search results for author: jimmylegs
http://www.thisisms.com/forum/search.ph ... mit=Search

I don't get severe or cluster headaches or migraines but I do get MS headaches on a somewhat regular basis and wanted to share what I use for relief - Royal Jelly capsules. I started taking Royal Jelly on a daily basis about 1 1/2 years ago for general health. For those of you that are not familiar with Royal Jelly, Royal jelly is a milky-white secretion produced by glands of worker honeybees consumed by the queen to give the queen bee superior growth and development. It is available in jelly form but I take the capsules which I believe contain freeze dried Royal Jelly. It seems to work for me with my headaches and seems to lesson the duration of the episodes I have, although I generally only take it with the more intense episodes (aside from my regular daily dose). It take it as necessary. I don't believe their is a daily dosage limit. And obviously, if you are allergic to bees, you should not use this product.

I don't take any type of traditional pain relievers and rely on this product when I have pain and/or discomfort. It may be worth a try to see if it works for you if you also prefer not to use OTC pain relievers.

ElliotB wrote:I don't get severe or cluster headaches or migraines but I do get MS headaches on a somewhat regular basis and wanted to share what I use for relief - Royal Jelly capsules. I started taking Royal Jelly on a daily basis about 1 1/2 years ago for general health. For those of you that are not familiar with Royal Jelly, Royal jelly is a milky-white secretion produced by glands of worker honeybees consumed by the queen to give the queen bee superior growth and development. It is available in jelly form but I take the capsules which I believe contain freeze dried Royal Jelly. It seems to work for me with my headaches and seems to lesson the duration of the episodes I have, although I generally only take it with the more intense episodes (aside from my regular daily dose). It take it as necessary. I don't believe their is a daily dosage limit. And obviously, if you are allergic to bees, you should not use this product.

I don't take any type of traditional pain relievers and rely on this product when I have pain and/or discomfort. It may be worth a try to see if it works for you if you also prefer not to use OTC pain relievers.

I am curious about Royal Jelly, ElliotB. I don't get headaches of any kind, I have never tried it. What do you suppose is in it that could affect headaches? Is there a nutrition label on your product?

Just wondering…

I am not sure how or why it works. But I am pretty certain that it does for me. I read many positive testimonials prior to taking it. Here a link to the website for the company I buy mine from:

http://www.durhamsbeefarm.com/


I also found this interesting link that goes over some of the known benefits:

http://www.bee-pollen-buzz.com/health-b ... jelly.html

I don't only take it for headaches. I find it cuts the length of my episodes down in half (mine typically last almost 1 1/2 hours from start to end) if I take it early on.

ElliotB wrote:I am not sure how or why it works. But I am pretty certain that it does for me. I read many positive testimonials prior to taking it. Here a link to the website for the company I buy mine from:

http://www.durhamsbeefarm.com/


I also found this interesting link that goes over some of the known benefits:

http://www.bee-pollen-buzz.com/health-b ... jelly.html

I don't only take it for headaches. I find it cuts the length of my episodes down in half (mine typically last almost 1 1/2 hours from start to end) if I take it early on.

Thank you, ElliotB. I'm thinking I may have to give this a try.

By following up on one of the links you provided I came across this:

http://www.bee-pollen-buzz.com/royal-jelly-vitamin.html

Royal Jelly is a nutritional powerhouse. It contains vitamins A, all the B-vitamins, C, D and E. It is particularly high in the B vitamins including B1, B2, B3, B6, B12, biotin, folic acid, and inositol. It is also high in the B vitamin pantothenic acid, which is recognized for its ability to reduce stress levels and even reverse the graying of hair.
According to the United States Department of Agriculture, one gram of Royal Jelly contains the following amounts of vitamins:
Vitamin B1 - 1.5 to 7.4 mcg
Vitamin B2 - 5.3 to 10 mcg
Vitamin B3 - 91 to 149 mcg
Vitamin B5 - 65 to 200 mcg
Vitamin B6 - 2.2 to 10.2 mcg
Biotin - 0.9 to 3.7 mcg
Inositol - 78 to 150 mcg
Folic Acid - 0.16 to 0.5 mcg
Vitamin C - trace amounts

I find this very interesting! And I think jimmylegs will too, when later it says:

It also supplies the minerals:
calcium
copper
iron
phosphorous
potassium
silicon
sulfur

You can order single bottles direct from Amazon.

Please let us know if it works for you.

related science:
Trace and mineral elements in royal jelly and homeostatic effects.
http://www.ncbi.nlm.nih.gov/pubmed/16325534
"Royal jelly from Apis mellifera is a highly active natural biological substance and is probably one of the most interesting raw substances in natural product chemistry. Trace elements play a key role in the biomedical activities associated with royal jelly, as these elements have a multitude of known and unknown biological functions. For this reason concentrations of 28 trace (Al, Ba, Sr, Bi, Cd, Hg, Pb, Sn, Te, Tl, W, Sb, Cr, Ni, Ti, V, Co, Mo) and mineral (P, S, Ca, Mg, K, Na, Zn, Fe, Cu, Mn) elements were systematically investigated in botanically and geologically defined royal jelly samples. In addition, concentrations of 14 trace elements were measured in the associated honey samples--honey being the precursor of royal jelly. Concentrations of K, Na, Mg, Ca, P, S, Cu, Fe, Zn, Al, Ba and Sr in royal jelly were determined by inductively coupled plasma optical emission spectroscopy (ICP-OES), while concentrations of Bi, Cd, Hg, Pb, Sn, Te, Tl, W, Sb, Cr, Mn, Ni, Ti, V, Co and Mo in royal jelly were determined by double focusing magnetic sector field inductively coupled plasma mass spectrometry (SF-ICP-MS). In the honey samples, trace and mineral element concentrations strongly depended on botanical and geological origin, and substantial variation was found. In contrast, the concentrations of trace and mineral elements were highly constant in the associated royal jelly samples. The most important results were the homeostatic adjustments of trace and mineral element concentrations in royal jelly. This effect was evidently produced in the endocrine glands of nurse bees, which are adapted for needs of bee larvae. In conclusion, this research yielded a surprising and completely new finding--that royal jelly, as a form of lactation on the insect level, shows the same homeostatic adjustment as mammalian and human breast milk.
"The most abundant mineral elements in royal jelly samples were K, Na, Mg, Ca, P, and S. Zn, Fe, Cu, Al and Mn were abundant trace elements in royal jelly (Table 2; Figs. 1 and 2)."

in case anyone would rather be a queen bee:
THE CHANGES IN THE THIAMINE, RIBOFLAVIN, NIACIN AND PANTOTHENIC ACID CONTENT IN THE FOOD OF FEMALE HONEYBEES DURING GROWTH WITH A NOTE ON THE VITAMIN K ACTIVITY OF ROYAL JELLY AND BEEBREAD
http://www.ingentaconnect.com/content/e ... 3/art00011
The term “royal jelly” refers to the product formed and secreted by the pharyngeal glands of the nurse bees for the nourishment of the queen larvae. Larvae which are to become the sexually underdeveloped female worker bees receive during the first two to three days of their development the “larval food” similar to that given the queen larvae. Afterwards they are believed to be supplied with the “larval food” which is poorer in nitrogenous materials and lacks a factor or factors necessary for the production of queens. Recent investigations (Haydak, 1943) showed, however, that the food of older worker larvae does not differ appreciably in its protein content from the food of older queen larvae, but is considerably lower in the fat and mineral contents. The major purpose of this study was to determine whether there are any differences in the concentration of certain of the B vitamins in the food supplied to the queen and worker larvae during the period of their growth.