Help ease my mind
Posted: Wed Feb 25, 2015 9:14 pm
Help, before I go making a big deal out of a bunch of little things I'd like your opinions. Sorry it's so long I need to get this all out, I feel like I'm going crazy. I don't know if it is just in my head or not. My faith and trust in doctors is almost nonexistent thanks to some bad childhood experiences.
About a year and half ago, I was 17, and it was about September. I started noticing I was getting headaches almost every. Like my eyes were straining and tired. I thought I just need my prescription changed, but my eye doctor said it hadn't and that I should mention these headaches to my doctor. Over the next few months they got worse, headaches turned into migraines. I'd walk around in a daze, ask a question twice within a couple minutes, forget what I was looking for, jumble my words together, all those little things people catch themselves doing only way more often. I'd feel like I was moving when I was sitting still, like on a boat. I'd feel that way in a vehicle, not like being car sick, (though I'd always have the worst migraine by time I made it home) like I was moving inside it, while it was moving in whatever direction we were going. Then spring comes, i'm now 18 I finally go to the doctor. I had been having these aches and pains in my legs kind of numb but like, cramps that'd come from nowhere. She had a cat scan done because the headaches were getting worse and she was kind of worried. That came back clear. She referred me to a neurologist and the next available appointment was 5-6 months away. Guess what, the headaches start to get better, still almost daily just not as severe. It's August, I think I have a toothache, that comes and goes. I try toughing it out, I make 4 days but it's a burning ache with a sharp throb and the occasional burst of hot needles. I go to the er at 10 pm, terrified they'll turn me away because it's a tooth and they don't handle that, to find out I have trigeminal neuralgia. I looked that up and found out it's uncommon in people my age. That it's linked to ms, I had no idea what it was so I looked into it a little and things just seem to keep adding up, so I looked harder but back to the story. Over the summer the headaches got better but I got dizzier. I'd stumble over my own two feet I was always uncoordinated but not like that. I almost thought I was getting heat stroke and because the hotter it was the worse I seemed to feel but I never had any trouble before with it. I went my doctor to get my prescription and update her on the TN she seemed to think there was something more to it also even though I hadn't said anything. She checked me over and when she had me fallow her fingers my eyes shook. I was sent straight to the eye doctor, who said he couldn't see it, but ordered a Mri anyway. That came back normal. ( I read they can be normal in the early stages, so that didn't help much.) October came I went to the neurologist, I brought up the trigeminal neuralgia he brushed it off. Only talked about the headaches which are manageable and the dizziness which, he said is a migraine without the headache. He put me on something for them and I'm due back in April.
Here are the symptoms I think I have.
•I go numb in my legs and arms very easy to point I can't stand
•I had bladder issues. Where i'd get the urge to go really bad and dribble before I made it to the toilet
• vision disturbances flickers floaters
•things are crawling on me feeling goes with numb I know
•speech issues things don't come out how they should even with a lot of thought
•joint pain my ankle knees and hips I feel like an old lady
•tired
•weaker I'm a strong girl but it feels like I lost a lot of my strength but I'll admit I'm not doing as much as I did before to stay fit.
No, they're not all happening now or at once but I read up on ms beacuse of my tn and these are what stood out to me at least what I can remeaber going "hey that sounds like me!" Honestly I think there's a couple others but It is 12 am and im falling asleep writing this.
About a year and half ago, I was 17, and it was about September. I started noticing I was getting headaches almost every. Like my eyes were straining and tired. I thought I just need my prescription changed, but my eye doctor said it hadn't and that I should mention these headaches to my doctor. Over the next few months they got worse, headaches turned into migraines. I'd walk around in a daze, ask a question twice within a couple minutes, forget what I was looking for, jumble my words together, all those little things people catch themselves doing only way more often. I'd feel like I was moving when I was sitting still, like on a boat. I'd feel that way in a vehicle, not like being car sick, (though I'd always have the worst migraine by time I made it home) like I was moving inside it, while it was moving in whatever direction we were going. Then spring comes, i'm now 18 I finally go to the doctor. I had been having these aches and pains in my legs kind of numb but like, cramps that'd come from nowhere. She had a cat scan done because the headaches were getting worse and she was kind of worried. That came back clear. She referred me to a neurologist and the next available appointment was 5-6 months away. Guess what, the headaches start to get better, still almost daily just not as severe. It's August, I think I have a toothache, that comes and goes. I try toughing it out, I make 4 days but it's a burning ache with a sharp throb and the occasional burst of hot needles. I go to the er at 10 pm, terrified they'll turn me away because it's a tooth and they don't handle that, to find out I have trigeminal neuralgia. I looked that up and found out it's uncommon in people my age. That it's linked to ms, I had no idea what it was so I looked into it a little and things just seem to keep adding up, so I looked harder but back to the story. Over the summer the headaches got better but I got dizzier. I'd stumble over my own two feet I was always uncoordinated but not like that. I almost thought I was getting heat stroke and because the hotter it was the worse I seemed to feel but I never had any trouble before with it. I went my doctor to get my prescription and update her on the TN she seemed to think there was something more to it also even though I hadn't said anything. She checked me over and when she had me fallow her fingers my eyes shook. I was sent straight to the eye doctor, who said he couldn't see it, but ordered a Mri anyway. That came back normal. ( I read they can be normal in the early stages, so that didn't help much.) October came I went to the neurologist, I brought up the trigeminal neuralgia he brushed it off. Only talked about the headaches which are manageable and the dizziness which, he said is a migraine without the headache. He put me on something for them and I'm due back in April.
Here are the symptoms I think I have.
•I go numb in my legs and arms very easy to point I can't stand
•I had bladder issues. Where i'd get the urge to go really bad and dribble before I made it to the toilet
• vision disturbances flickers floaters
•things are crawling on me feeling goes with numb I know
•speech issues things don't come out how they should even with a lot of thought
•joint pain my ankle knees and hips I feel like an old lady
•tired
•weaker I'm a strong girl but it feels like I lost a lot of my strength but I'll admit I'm not doing as much as I did before to stay fit.
No, they're not all happening now or at once but I read up on ms beacuse of my tn and these are what stood out to me at least what I can remeaber going "hey that sounds like me!" Honestly I think there's a couple others but It is 12 am and im falling asleep writing this.