Children with MS
Posted: Wed Jul 29, 2015 7:14 pm
Hi,
does anyone else have teenage children with MS?
I would be really interested to swap notes with other parents.
My 18-year-old daughter has RRMS - diagnosed at 15 after losing left side movement - she is now 18 and managed to finish school and start at university despite crippling fatigue - time management has been critical.
She is on Gilenya (Fingolimod) and LDN, plus takes a pile of supplements.
She is trying to have some 'normal' time at uni but it is so challenging when you have to lie down between 1 and 4pm every day, have to go to bed at 9.30pm, can't drink or catch public transport alone.
Love to hear from other parents in a similar situation or people who were diagnosed in their teens.
does anyone else have teenage children with MS?
I would be really interested to swap notes with other parents.
My 18-year-old daughter has RRMS - diagnosed at 15 after losing left side movement - she is now 18 and managed to finish school and start at university despite crippling fatigue - time management has been critical.
She is on Gilenya (Fingolimod) and LDN, plus takes a pile of supplements.
She is trying to have some 'normal' time at uni but it is so challenging when you have to lie down between 1 and 4pm every day, have to go to bed at 9.30pm, can't drink or catch public transport alone.
Love to hear from other parents in a similar situation or people who were diagnosed in their teens.