Re: Coimbra’s Protocol Summary
Posted: Sun Aug 14, 2016 9:15 am
I had MS for 26 yrs before starting D protocol, so I have more damage than you. Haven't had any testing since starting D.
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Milliecats wrote:Hi, I'm new to this forum.
Can anyone help me!!
I was diagnosed with rm ms in Jan 2016, but know I have had it since at least 2008. My man symptoms are leg weakness and pins and needles.
I leant about the Coimbra protocol immediately and went to Portugal to meet a Dr there. I've been on it for 3.5 months. BUT this is the thing, I feel worse. I have headaches and dizziness and generally feel unwell. My bloods and urine checks are fine and of course I have been following the protocol to the letter. It worries me as I feel this is my only hope and I really want to continue on it. But I just feel really unwell and it's had to function to the point where I think I may have to stop it.
Has anyone had any similar experiences?
Thank you
HUD45 wrote:Hi Milliecats,
I have been on the Coimbra protocol since Feb. '16. I read your post and it seems I am having similar symptoms as you. I have PPMS and have been having brutal fatigue, numbness, pins and needles....PAIN! It really sucks.
I am doing a good job of following the protocol and tomorrow I am heading to the clinic for another round of tests to monitor things as scheduled.
It's a big week for me because I have been having similar thoughts as you as far as staying on the protocol. Like you, I want to stick with it because it gives me hope and maybe a chance at stabilization. On the other hand, I can't help but think that I may feel better without the high dose D.
I will keep you posted after test results from tomorrow's lab visit.
Thanks for the post....HUD
HUD45 wrote:Hi Antonio...
I wish I could answer your question accurately. I am really having a tough go lately. Every day seems a touch worse. I have a feeling it is just the MS process but I wonder if the Hi D is partially responsible. Still waiting for my test results.
Would really low PTH cause exacerbation?
Could the LDN be responsible at all?
Does your brother take any magnesium supplement?
I'll keep you posted after I get labs....
HUD
PTH around 12pg/mL was the PTH lower level of my brother many months ago.ElliotB wrote:Antonio, thanks for the additional info.
Another question, regarding PTH level. If you are not at the optimum level (I believe you said around 12), how do you adjust it? (I am not sure if I read/understood what you wrote correctly, but do you increase your intake of D to reduce the PTH level?)
Also, how much DHA is recommended on a daily basis?
So, as a new recommendation, should I take 1,000mg of magnesium and 400mg of Riboflavin per day?- Magnesium chloride or glycinate: 250 milligrams
- Riboflavin: 50-100 mg milligrams
4 pills per day.
Lionel wrote:So, as a new recommendation, should I take 1,000mg of magnesium and 400mg of Riboflavin per day?
Bottom Line: the higher is your vitamin D dose (and PTH) more magnesium and (especially) vitamin B2 you will need. Stressed people also need more magnesium.