Hi, I am having my first meeting with the neurologist after diagnosis.
Any questions I should ask? Feeling a bit blank.
I will be getting to see my MRI and getting it explained. I have also gotten Tecfidera and taking it for a month, so medication is ok. I have the general picture of the illness.
Are there more things I should know?
Any advice is greatly appreciated:)
First neuro appointment - what to ask?
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littlestbabie
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Re: First neuro appointment - what to ask?
I'm going for my 2nd neuro appointment on the 21st! you're super lucky to have already started your meds - i'm submitting my request for Tecfidera at my appt 
here are some links about important questions to ask your doctor when you're newly diagnosed with MS, I hope they help! I'm going to rely on them as resources as well ^^
http://www.webmd.com/multiple-sclerosis ... -questions
http://www.everydayhealth.com/multiple- ... -ms-doctor
http://www.nationalmssociety.org/Treati ... tor-Visits
http://www.drugs.com/slideshow/multiple ... tions-1091
http://lovinlifenow.com/neuro-questions.html
I hope some of these are useful, or inspire you to think of your own personal questions! Here is the list I compiled while reading these articles:
1. What kind of multiple sclerosis do I have?
2. Could anything else be causing my symptoms? “Most MS symptoms can also be caused by other conditions like genetic disorders and infections. They can also be brought on by a lack of vitamin B12. Because there's no one test for MS, your doctor needs to rule out other possible causes for your symptoms before giving you an MS diagnosis.”
3. What can I do at home to manage my symptoms?
(exercise, diet, vitamins/supplements? high dose vitamin D? what vitamins should I pair with the vit D? (magnesium, iron, etc)
4. “If you were diagnosed with MS, what would you pursue as a treatment method/what medication would you use?” copaxone vs tecfidera.
5. Is MS hereditary? How likely is it that my kids will get MS?
6. What should I do if I have a new round of symptoms while taking medication? Stop taking the meds, or try to get prescribed a different one? Is the medicine going to help decrease or eliminate the symptoms? Or is it possible that I will always have this tingling sensation and that the medicine will only stop the progression to a different stage?
7. How does alcohol/caffeine/smoking effect MS symptoms and MS progression?
8. what, if anything, should I say to my boss and co-workers? What should I do if I feel I’m being discriminated against at work or school because of MS?
9. what happens if i forget to take my medication?
10. Should I seek a second opinion? Why or why not?
11. How will my condition be monitored? Are there any warning signs I should look for?
here are some links about important questions to ask your doctor when you're newly diagnosed with MS, I hope they help! I'm going to rely on them as resources as well ^^http://www.webmd.com/multiple-sclerosis ... -questions
http://www.everydayhealth.com/multiple- ... -ms-doctor
http://www.nationalmssociety.org/Treati ... tor-Visits
http://www.drugs.com/slideshow/multiple ... tions-1091
http://lovinlifenow.com/neuro-questions.html
I hope some of these are useful, or inspire you to think of your own personal questions! Here is the list I compiled while reading these articles:
1. What kind of multiple sclerosis do I have?
2. Could anything else be causing my symptoms? “Most MS symptoms can also be caused by other conditions like genetic disorders and infections. They can also be brought on by a lack of vitamin B12. Because there's no one test for MS, your doctor needs to rule out other possible causes for your symptoms before giving you an MS diagnosis.”
3. What can I do at home to manage my symptoms?
(exercise, diet, vitamins/supplements? high dose vitamin D? what vitamins should I pair with the vit D? (magnesium, iron, etc)
4. “If you were diagnosed with MS, what would you pursue as a treatment method/what medication would you use?” copaxone vs tecfidera.
5. Is MS hereditary? How likely is it that my kids will get MS?
6. What should I do if I have a new round of symptoms while taking medication? Stop taking the meds, or try to get prescribed a different one? Is the medicine going to help decrease or eliminate the symptoms? Or is it possible that I will always have this tingling sensation and that the medicine will only stop the progression to a different stage?
7. How does alcohol/caffeine/smoking effect MS symptoms and MS progression?
8. what, if anything, should I say to my boss and co-workers? What should I do if I feel I’m being discriminated against at work or school because of MS?
9. what happens if i forget to take my medication?
10. Should I seek a second opinion? Why or why not?
11. How will my condition be monitored? Are there any warning signs I should look for?